US. House of Representatives: Regarding Vague Reference Objections to Awareness Days

‘We don’t do those anymore…’ Now what? This is a brief description of an occasional yet pervasive challenge which DIPG Advocacy Group has met in its visits to Congressional Offices in Washington DC regarding the legitimacy of House Resolutions designating an awareness day, as the newly introduced H. Res. 114,…

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Reps Speier, Joyce Introduce Bipartisan Resolution to Fight Deadly Pediatric Cancer

Contact: DC – Tracy Manzer (202) 225-3531 (W) / (202) 538-0641 (C) tracy.manzer@mail.house.gov CA – Katrina Rill (650) 342-0300 (W) / (650) 208-7441 (C) katrina.rill@mail.house.gov Reps Speier, Joyce Introduce Bipartisan Resolution to Fight Deadly Pediatric Cancer Washington, DC –Today, Reps. Jackie Speier (D-San Francisco/San Mateo) and David P. Joyce (R-Cleveland),…

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CC-TDI Research Series I: DIPG Tumor Cell Hotel

Dr. Charles Keller, Scientific Director of the Children’s Cancer Therapy Development Institute, joins us with Dr. Anju Karki, post-doctoral fellow and DIPG Tumor Cell Hotel project leader describe this creative design to affect a real solution for children diagnosed with arguably the deadliest pediatric brain cancer, diffuse intrinsic pontine glioma.…

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The Pediatric Cancer Research Foundation with Jeri Wilson

Jeri Wilson, Executive Director, has been with PCRF (Pediatric Cancer Research Foundation) since September of 2011 and has taken this organization from a $1.5 million dollar operating budget to a $3.5 million dollar organization. All while keeping 84% of the funding going straight to research. Since 1982, PCRF has partnered…

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Outside the Box Part II, Jessica Doeden DIPG Survivor, Randy Hinton on Causes and Conditions

We follow-up and finish our conversation with Randy Hinton, father to Hayley who was diagnosed with DIPG (brainstem glioma-diffuse intrinsic pontine glioma) and perished to that disease some 13 years ago, regarding causes and conditions that remains the burden of parents to discover in their never-ending hunt for answers. We…

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The Children’s Cause for Cancer Advocacy with CEO George Dahlman

As the Chief Executive Officer of Children’s Cause for Cancer Advocacy, George Dahlman is responsible for the strategic management and operations of the nation’s preeminent childhood cancer policy organization. Mr. Dahlman is responsible for identifying and advancing issues that will improve the treatment and lives of childhood cancer patients and…

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Outside the Box with No Return: The Extraordinary Story of Hayley Hinton

Randy Hinton joins us from Summerville SC to discuss the circumstances surrounding his daughter Hayley’s diagnosis with brain cancer and the difficulties the family had in procuring effective and consolidated treatment for her. The controversial Burzynski Clinic in Houston TX takes center stage, as does Texas Anderson at Houston and…

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Facebook Post to Ryan Gosling

January 4, 2019, Agua Dulce, CA–I sent this note to Ryan Gosling on Facebook, hoping that somehow it would reach him: Hi Ryan, hoping this is actually your page. I just wanted you to know about an important awareness movement for the childhood cancer community, specifically for brainstem glioma–DIPG, the…

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Every Voice Matters: The Power of Initiative in Advocacy

Wendy and Dean Fachon of Rhode Island join us to talk about state legislation, national resolutions and the legacy of their son Neil, making a strong case for “Right to Try.” Paul Miller from Colorado shares about the power of social media and the magic of belief, with 2 successful…

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