Truth in Pictures, Reality in Words: The Extraordinary Photo-Journalism of Moriah Ratner

A recent graduate of Syracuse University’s School of Photo-Journalism, Moriah Ratner tells the story of the lovely Lola Munoz, a thirteen year old girl afflicted with the deadliest pediatric cancer, DIPG, published within the last year, is truly a work of distinction. Moriah shares with us the process of discovery…

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Love for Olivia, A Legacy of Hope

Chance Mazzell and his wife Heather share with us the story of their daughter Olivia and the places that DIPG, diffuse intrinsic pontine glioma, has led them. Olivia was diagnosed with DIPG on August 28th of 2018; her journey was particularly difficult out of the gate. The Mazzells, from Lexington,…

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Sara’s Cure Has Hope with CC-TDI’s Lissett Bickford Ph.D.

Sara’s Cure is a grassroots, race-against-time campaign focused on funding critical research to find a cure for Clear Cell Sarcoma. Lissett Bickford, now with Children’s Cancer Therapy Development Institute, a non-profit biotech company in Beaverton Oregon dedicated to eradicating childhood cancer, earned her PhD in Bioengineering at Rice University in…

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To the Leadership of the House of Representatives

H. Res. 114, the DIPG Awareness Resolution Out of sight and out of mind, the suffering and the tragedy continues, exemplified in a most horrific way by the experience of DIPG, which, out of the blue, robs the child of the use of their body until finally respiration ceases, retaining…

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Dogs Prove to Be Kids Best Friend, with Dr. Bernard Seguin and Ulrike Szalay

According the the Genomics Institute, 84% of dog DNA has human counterparts, so we suffer many of the same diseases, including most cancers. Dogs have a higher incidence of certain tumors which are considered rare in children. By studying these tumor types in dogs, we can learn a great deal…

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Alliance Support Letter for H. Res. 114

Please visit the Alliance for Childhood Cancer to see the full plate of legislative activity in which they engage as advocates for the childhood cancer community as a whole. April 15, 2018 pdf version The Honorable Frank Pallone, Jr. Chairman, Committee on Energy & Commerce 2107 Rayburn House Office Building Washington,…

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Colorado Treasures: The Morgan Adams Foundation and Cops Fighting Cancer

Denver CO–Morgan Adams Foundation co-founder Joan Slaughter joins us to share this organization’s 20 year history of advancing the clinical trial process for pediatric cancer in the medical research system. Her daughter Morgan had been diagnosed at 5 years old with GBM in 1997, surviving 11 months past the diagnosis…

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To the Members of the Energy and Commerce Committee, and Sub-Committee on Health

The missing ingredient is greater public awareness to the chronic lack of adequate research funding for pediatric cancers, most of which are deadly, marginalized as rare, and devoid of solutions.   Thank you for considering this and the attached information being distributed among all members of the House of Representatives.  Your…

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Research Edition #3: Hepatoblastoma and the Foundation for Addie’s Research

After months of frustrating ER visits for high fevers, Adelaide ‘Addie’ was diagnosed in November 2015 with Hepatoblastoma, a rare pediatric liver cancer; it was just four days before her 2nd birthday. Addie fought a fast-spreading disease with grace; she shared her contagious smile and joyous spirit with everyone she…

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