JUST SAY IT!

“They were told it was a ‘rare’ brain tumor, and that nothing had been done for decades, in research, because the ‘numbers’ weren’t great enough for investors.  After his death, they came to learn that DIPG is one of the more common pediatric brain tumors(12% incidence), and responsible for roughly…

Continue reading

New Research, New Hope

This important article is featured in Frontiers in Oncology, part of the research topic, “Advances in Diffuse Intrinsic Pontine Glioma”, accessible here giving full credit to sources; the article appears here as it was written.  Link to Article MINI REVIEW ARTICLE Front. Oncol., 01 July 2015 | http://dx.doi.org/10.3389/fonc.2015.00148 Future clinical…

Continue reading

Petition for DIPG and Childhood Cancer

Please help us get a National Day for our DIPG heroes!   This could seriously help our kids and childhood cancer research.  That’s right, you really do have the power to create change!  All it takes is clicking a button, but you have to actually do it for it to work,…

Continue reading

DIPG Awareness Run kicks-off the WEEK in California

The DIPG Awareness Run on May 25, 2015 marked the beginning of the first celebrated DIPG Awareness Week in the State of California.  Declared in June of 2014 by the California State Assembly, thanks to the work of Assemblyman Scott Wilk, a national statement and achievement was made for DIPG,…

Continue reading

DIPG Awareness Week in California, May 25-31

Wednesday, May 20, Santa Clarita, CA–DIPG, diffuse intrinsic pontine glioma, is a pediatric brain tumor that is invariably terminal with no progress made to that effect in over 35 years of clinical record.  DIPG is responsible for roughly 80% of pediatric brain tumor deaths annually[1], the leading cause of cancer-related…

Continue reading

Because of Lauren…

  Lauren Hill, 19, died on Friday, April 10 2014 after a very public, 16-month battle with DIPG.  In her fight, she began the victory against indifference to childhood cancer, and for awareness for DIPG–diffuse intrinsic pontine glioma–an invariably terminal pediatric brain tumor, in the midst of which thousands of…

Continue reading