A Family Affair: Kendal Brown and her Family in South Carolina

Sandra Brown joins us on Childhood Cancer Talk Radio from Dillon, South Carolina to share the story of her beautiful, 10 year old granddaughter who is fighting brain cancer like a champion. Involved in an ongoing clinical trial for DIPG, Kendal was an honor student this past year, and is…

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From Advocacy to Activism: DIPG Advocacy Group Salutes Cannonballs Across America

May 2019 has witnessed important advances in pediatric brain cancer awareness, advocacy, and the fulfillment of a life-time dream by a dedicated brother and his friends for Kayne Finley of Ormond Beach FL, deceased 18 months ago to DIPG. DIPG is the second most common but deadliest pediatric brain cancer,…

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Truth in Pictures, Reality in Words: The Extraordinary Photo-Journalism of Moriah Ratner

A recent graduate of Syracuse University’s School of Photo-Journalism, Moriah Ratner tells the story of the lovely Lola Munoz, a thirteen year old girl afflicted with the deadliest pediatric cancer, DIPG, published within the last year, is truly a work of distinction. Moriah shares with us the process of discovery…

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Love for Olivia, A Legacy of Hope

Chance Mazzell and his wife Heather share with us the story of their daughter Olivia and the places that DIPG, diffuse intrinsic pontine glioma, has led them. Olivia was diagnosed with DIPG on August 28th of 2018; her journey was particularly difficult out of the gate. The Mazzells, from Lexington,…

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Sara’s Cure Has Hope with CC-TDI’s Lissett Bickford Ph.D.

Sara’s Cure is a grassroots, race-against-time campaign focused on funding critical research to find a cure for Clear Cell Sarcoma. Lissett Bickford, now with Children’s Cancer Therapy Development Institute, a non-profit biotech company in Beaverton Oregon dedicated to eradicating childhood cancer, earned her PhD in Bioengineering at Rice University in…

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To the Leadership of the House of Representatives

H. Res. 114, the DIPG Awareness Resolution Out of sight and out of mind, the suffering and the tragedy continues, exemplified in a most horrific way by the experience of DIPG, which, out of the blue, robs the child of the use of their body until finally respiration ceases, retaining…

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Research Series Part II: Osteosarcoma and the Trey Foote Foundation

The second edition of Childhood Cancer Talk Radio’s Research Series with Children’s Cancer Therapy Development Institute features an osteosarcoma research project directed by Jin-ah Kim PhD. Originally from South Korea, Kim describes her education experience, vocational direction to cancer research, and the unique challenges and goals for the project. The…

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Urgency of Need: Awareness and Research for Pediatric Brain Cancer, with Steven Healey

Steven Healey shares the inspiration behind the foundation, his beautiful, forever-5 year old daughter Brooke who’s life lasted just eight months post diagnosis of DIPG, a deadly pediatric brain cancer. Healey describes the harrowing experience as a parent, but also about a new-found community of families dedicated to funding research…

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US. House of Representatives: Regarding Vague Reference Objections to Awareness Days

‘We don’t do those anymore…’ Now what? This is a brief description of an occasional yet pervasive challenge which DIPG Advocacy Group has met in its visits to Congressional Offices in Washington DC regarding the legitimacy of House Resolutions designating an awareness day, as the newly introduced H. Res. 114,…

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