Feb. 4 CCTalkRadio: Children’s Cancer Therapy Development Institute

Thursday, Feb. 4 at 4pm EST, CCTR interviews Jonathan Agin, Development Liaison and General Counsel for the Children’s Cancer Therapy Development Institute, or CC-TDI, a non-profit biotech company dedicated to eradicating childhood cancer in all forms.  Jonathan is an attorney by trade and has become one of the United States…

Continue reading

CCTR Presents 1/28/2016

Lisa Solis DeLong, Author of “Blood Brothers”–a memoir of loss and faith while raising two sons with cancer Lisa’s book, “Blood Brothers” http://bit.ly/LisaDelong  /  Lisa’s Tedx talk on “Death Cafe” http://bit.ly/lisadelong Lisa Solis DeLong, author, nurse, bereavement facilitator, patient advocate, and last but not least–mom!–joins us for a candid discussion…

Continue reading

Moonshot

Chad and Jack’s DIPG Resolution and Childhood Cancer; is it relevant? The Resolution is named for Chad Carr of Michigan and Jack Demeter of California, both beloved and perished to DIPG. …this is about making a decision, a decision to not look away, but to acknowledge the relevance of life.…

Continue reading

A Personal Appeal

pdf version Janet Demeter, Santa Clarita CA                                                                                     November 13, 2015 My son’s story is similar to many DIPG-diagnosed children; it is unique because he was precious, as all children are precious.  It is my hope that it may help shed light on this experience that is DIPG, that more will…

Continue reading

Childhood Cancer Awareness; why won’t they “go GOLD”?

In Loving Memory of Evylah d. 10.10.15 September was Childhood Cancer Awareness Month, but for some reason the President refused to flood-light the White House gold, even for a day, as it goes pink for breast cancer, rainbow for same-sex marriage, and the list goes on.  To add insult to injury,…

Continue reading

Mathias Law

State of Virginia Steps Up for Childhood Cancer Awareness A friend posted this on my facebook page, by Glennon Doyle Melton, award-winning author; wanted it to be here as well as an example of the urgent need for research into all pediatric cancer, which in unconscionably underfunded in our country.…

Continue reading

Reliving it without knowing.

Oct. 26, 2015The past few weeks I’ve fought depression, anxiety, jumping heart, breathlessness.  Tried to whip myself into shape by keeping running–even doing a race last weekend, which physically I dreaded knowing how hard it would be.  No heart attack, stroke; same depression, desire to sit and stare.  While sitting…

Continue reading