Alliance Support Letter for H. Res. 114

Please visit the Alliance for Childhood Cancer to see the full plate of legislative activity in which they engage as advocates for the childhood cancer community as a whole. April 15, 2018 pdf version The Honorable Frank Pallone, Jr. Chairman, Committee on Energy & Commerce 2107 Rayburn House Office Building Washington,…

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To the Members of the Energy and Commerce Committee, and Sub-Committee on Health

The missing ingredient is greater public awareness to the chronic lack of adequate research funding for pediatric cancers, most of which are deadly, marginalized as rare, and devoid of solutions.   Thank you for considering this and the attached information being distributed among all members of the House of Representatives.  Your…

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Facebook Post to Ryan Gosling

January 4, 2019, Agua Dulce, CA–I sent this note to Ryan Gosling on Facebook, hoping that somehow it would reach him: Hi Ryan, hoping this is actually your page. I just wanted you to know about an important awareness movement for the childhood cancer community, specifically for brainstem glioma–DIPG, the…

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DIPG Advocacy Group Letter to House Leadership

re:  H. Res. 69 House Vote before the end of Session II, 115th Congress                                       November 28, 2018 To: The Honorable Speaker of the House of Representatives Paul Ryan (WI-1), The Honorable Majority Leader Kevin McCarthy, Minority Leader Nancy Pelosi (CA-12); The Honorable Chairman of the Energy…

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Appeal for a Presidential Proclamation for the Deadliest Pediatric Brain Cancer

On Day 23 of Brain Tumor Awareness Month in 2018, it seemed apropos to share this appeal: The Honorable Donald J. Trump President of the United States The White House Office of Proclamations 1600 Pennsylvania Avenue NW Washington, DC 20500   Dear President Trump,   On behalf of the DIPG…

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Letter to the President

There is a specialized killer on the loose taking the lives of 350 children a year in our country with certain regularity; I believe we’d be using whatever resources necessary to track him down if he were a person. September 6, 2016 Dear President Obama, I’ve written to you a…

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Letter to President Obama

To President Barack Obama:                                                                                       Thursday May 5, 2016 I had the pleasure of meeting with Fae Jencks in the Office of Science and Technology this last Tuesday regarding an Awareness Resolution currently in the House of Representatives, HRes586, designating the 4th week of May to be National DIPG Awareness Week. …

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Moonshot

Chad and Jack’s DIPG Resolution and Childhood Cancer; is it relevant? The Resolution is named for Chad Carr of Michigan and Jack Demeter of California, both beloved and perished to DIPG. …this is about making a decision, a decision to not look away, but to acknowledge the relevance of life.…

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Letter to the President

pdf version   letter sent to Congressional leaders President Barack Obama The White House 1600 Pennsylvania Avenue NW Washington DC, 20500 Tuesday, September 15, 2015 Dear President Obama, I cannot thank you enough for your kind replies to my previous letters about DIPG children and the desire for more effective action…

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Letter to Governor Brown, updated

This has been re-submitted to California Governor Jerry Brown –“Thank you Governor Brown, for your consideration and time, which I know is limited to very urgent matters. I must emphasize that my reaching out to you in full knowledge of this is due to the fact that I am aware of…

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