DIPG Awareness Day—A National Movement

(H.Res.69 asks for a date henceforth, not just for this year, and retroactively–that May 17th be National DIPG Awareness Day.  The importance of the Resolution is with the raising of awareness to the negelect of pediatric cancer research in our medical research system, and the unacceptable realities that parents across …

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Hope for Osteosarcoma Research: #BecauseofDaniel

Professionally, Theresa Beech has had 20 years of experience as a space engineer designing satellite mission ground systems. She has worked as a ground systems engineer, technical lead, subject matter expert, and program manager for a wide variety of satellite ground systems around the world. She comes to Childhood Cancer …

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May 17 is DIPG Awareness Day—A National Movement

I discovered it was the 2nd most common pediatric brain tumor, and responsible for the majority of pediatric brain cancer deaths each year.  If brain cancer is the leading cause of death in kids with cancer, it’s hardly irrelevant, no matter how you define ‘rare’. May 14, 2017, Santa Clarita, …

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K.I.D.S. Campaign with Christine Hanlon

CCTR interviews Christine Hanlon, Executive Director of the KIDS Campaign or Kindness In Doing Service, a 501(c)3 charitable organization devoted to sharing love and service with the childhood cancer community. Christine lives in the greater Tampa Bay area in Florida with her son Dylan, a survivor of Ewings sarcoma. Melanie …

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National Cancer Institute’s Office of Advocacy Relations: A Conversation with Patrick Mahoney

Childhood Cancer Talk Radio interviews Patrick Mahoney from the Office of Advocacy Relations (OAR) at NCI.  The March 16 discussion included a brief history of the National Cancer Institute, it’s role as a scientific research institution as well as resource of support and direction for millions afflicted with cancer.  “We …

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“Run the Rocks!” Event Supports Research Project for Pediatric Brain Cancer

March 6, 2017, Santa Clarita, CA–Jack’s Angels Foundation of Agua Dulce, CA is organizing the trail running event “Run the Rocks!”—including a family walk—at Vasquez Rocks County Park 10700 Escondido Canyon Rd, Agua Dulce 91350, on Sunday April 30th 2017, with races beginning at 9am.  The event opens at 8:00 am …

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Rubio, Bennet Reintroduce Legislation Benefiting Pediatric Cancer Research

Link to Marco Rubio’s site:  http://www.rubio.senate.gov/public/index.cfm/2017/2/rubio-bennet-reintroduce-legislation-benefitting-pediatric-cancer-research Feb. 27, 2017 Washington, D.C. – U.S. Senators Marco Rubio (R-FL), Michael Bennet (D-CO), Chris Van Hollen (D-MD), and Cory Gardner (R-CO) today reintroduced the RACE for Children Act (Research to Accelerate Cures and Equity for Children Act), legislation supporting the development of innovative and promising …

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“Talking Advocacy” with Danielle Leach

Today’s guest, Danielle Leach, gives the childhood cancer community helpful information about advocacy, being a parent of a child with cancer, bereavement, experience with the non-profit health industry, and more practical advice for parents. There are many ways to advocate; you don’t have to go to Washington and talk to …

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4th Annual Santa Colorita Run Includes “Skip for Jack” Tribute to Children with the Deadliest Pediatric Brain Cancer, DIPG

For immediate release: 4th Annual Santa Colorita Run Includes “Skip for Jack” Tribute to Children with the Deadliest Pediatric Brain Cancer, DIPG February 18, 2017, Agua Dulce CA—The Santa Colorita 5k Fun-Run on February 25, 2017 at Castaic Lake Recreation Center in Castaic, CA, produced by the Santa Clarita Valley …

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NC3: Legislative Advocacy at the State and Municipal Level

CCTR interiews Christopher Winters, President of the emerging National Children’s Cancer Consortium, a project of collaboration between parents, advocates, and concerned citizens with policies developed after 18 months of current, grassroots research into the challenges children with cancer and their families face regularly. The goal of the Consortium is to …

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