National Cancer Institute’s Office of Advocacy Relations: A Conversation with Patrick Mahoney

Childhood Cancer Talk Radio interviews Patrick Mahoney from the Office of Advocacy Relations (OAR) at NCI.  The March 16 discussion included a brief history of the National Cancer Institute, it’s role as a scientific research institution as well as resource of support and direction for millions afflicted with cancer.  “We …

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“Run the Rocks!” Event Supports Research Project for Pediatric Brain Cancer

March 6, 2017, Santa Clarita, CA–Jack’s Angels Foundation of Agua Dulce, CA is organizing the trail running event “Run the Rocks!”—including a family walk—at Vasquez Rocks County Park 10700 Escondido Canyon Rd, Agua Dulce 91350, on Sunday April 30th 2017, with races beginning at 9am.  The event opens at 8:00 am …

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Rubio, Bennet Reintroduce Legislation Benefiting Pediatric Cancer Research

Link to Marco Rubio’s site:  http://www.rubio.senate.gov/public/index.cfm/2017/2/rubio-bennet-reintroduce-legislation-benefitting-pediatric-cancer-research Feb. 27, 2017 Washington, D.C. – U.S. Senators Marco Rubio (R-FL), Michael Bennet (D-CO), Chris Van Hollen (D-MD), and Cory Gardner (R-CO) today reintroduced the RACE for Children Act (Research to Accelerate Cures and Equity for Children Act), legislation supporting the development of innovative and promising …

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“Talking Advocacy” with Danielle Leach

Today’s guest, Danielle Leach, gives the childhood cancer community helpful information about advocacy, being a parent of a child with cancer, bereavement, experience with the non-profit health industry, and more practical advice for parents. There are many ways to advocate; you don’t have to go to Washington and talk to …

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4th Annual Santa Colorita Run Includes “Skip for Jack” Tribute to Children with the Deadliest Pediatric Brain Cancer, DIPG

For immediate release: 4th Annual Santa Colorita Run Includes “Skip for Jack” Tribute to Children with the Deadliest Pediatric Brain Cancer, DIPG February 18, 2017, Agua Dulce CA—The Santa Colorita 5k Fun-Run on February 25, 2017 at Castaic Lake Recreation Center in Castaic, CA, produced by the Santa Clarita Valley …

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NC3: Legislative Advocacy at the State and Municipal Level

CCTR interiews Christopher Winters, President of the emerging National Children’s Cancer Consortium, a project of collaboration between parents, advocates, and concerned citizens with policies developed after 18 months of current, grassroots research into the challenges children with cancer and their families face regularly. The goal of the Consortium is to …

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NC3 Debut and Press Release

Christopher Winters, President, National Children’s Cancer Consortium February 9, 2017 Our Dearest Pediatric Cancer Community Heroes, Families, Fellow Advocates, Decision Makers, and our Friends and Families: Today, we are honored to announce the formation of a properly licensed non-profit legislative advocacy organization dedicated to taking the war on pediatric cancer …

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H.Res.69 and Supporting Events

Jack’s Angels Relay for Research #runforDIPG #CureDIPG With the introduction, January 30th, of the 2017 National DIPG Awareness Resolution (H.Res.69) by our very own Congressman Steve Knight, Jack’s Angels Foundation will be working hard to advocate for its passage and to raise awareness for the urgent need for greater pediatric …

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KNIGHT REINTRODUCES BIPARTISAN BILL FOR CHILDHOOD CANCER RESEARCH

For a copy of pre-introductory text, click here. CONGRESSMAN WORKING WITH AGUA DULCE RESIDENT TO INCREASE ATTENTION AND FUNDING FOR PEDIATRIC CANCER (WASHINGTON, DC) – Representative Steve Knight (CA-25) and Congresswoman Jackie Speier (CA-14) reintroduced a bipartisan resolution on Monday that would raise awareness and support research for a form …

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