DEADLINE for signatures March 22, Dear Colleague letter for FY24 language for targeted funding of DIPG/Childhood Brain Cancer

To the Greater DIPG/Childhood Brain Cancer Community of Families, Advocates, and Organizations: We have a unique opportunity to support targeted funding for DIPG and Pediatric Brain Cancer in the FY24 Funding Bill.  While the DIPG/Pediatric Brain Cancer Awareness Resolutions will be re-introduced this year as a supportive measure and an…

Continue reading

Letter to Speaker Pelosi, Dec. 22, 2020

What’s in a day?  Everything.  For us, absolutely everything. Madam Speaker, After 5 years of advocating for the National DIPG Awareness Resolution I’ve discovered that for the third introduction in 2019, the lead sponsor never intended to fight for this bill, or these kids, to be considered with respect to…

Continue reading

“Against the Odds,” with Howard Salmon

Howard Salmon comes to us from the Ronald McDonald House near the UC Davis Children’s Hospital in Sacramento, CA, where his son Liam is receiving some emergency care after having had some difficulty breathing. His wife Mary looks after him as the conversation progresses. Liam was diagnosed in January 2020…

Continue reading

So, let me ask you America…can’t we do better than that?

Hello, My name is Harold Mike Junge.  My friends and family call me Mike…so let’s stick with that.  It’s a pleasure to meet you!  I’m reaching out to you to discuss something very important…and I hope you will give me just a few minutes of your valuable time.  Hear me…

Continue reading

DIPG as Ambassador to Congress and the Public for Childhood Cancer

The Public needs powerful examples attain sufficient awareness to ensure accountability from Congress. If we want childhood cancer legislation like STAR and RACE to truly be supported, to have their respective allocations approved, to build upon and allow greater development and support for pediatric research, the Public must be aware–this…

Continue reading

Alliance Support Letter for H. Res. 114

Please visit the Alliance for Childhood Cancer to see the full plate of legislative activity in which they engage as advocates for the childhood cancer community as a whole. April 15, 2018 pdf version The Honorable Frank Pallone, Jr. Chairman, Committee on Energy & Commerce 2107 Rayburn House Office Building Washington,…

Continue reading

To the Members of the Energy and Commerce Committee, and Sub-Committee on Health

The missing ingredient is greater public awareness to the chronic lack of adequate research funding for pediatric cancers, most of which are deadly, marginalized as rare, and devoid of solutions.   Thank you for considering this and the attached information being distributed among all members of the House of Representatives.  Your…

Continue reading

Thank you R-cosponsors; last chance for H. Res. 69, meeting request DIPG Advocacy Group, Dec. 3-5

(Letter was sent to:  Barbara Comstock (VA-10), William Hurd (TX-23), Lamar Smith(TX-21), John Duncan (TN-2), Ryan Costello(PA-6), Scott Perry (PA-4), Duncan Hunter (CA-50), Andy Barr (KY-6), Daniel Donovan (NY-11), Brian Fitzpatrick (PA-8), Chris Collins (NY-27), Evan Jenkins (WV-3), Lou Barletta (PA-11), Steve Stivers, (OH-15), David Joyce (OH-14), and cc’d to…

Continue reading