Thank you R-cosponsors; last chance for H. Res. 69, meeting request DIPG Advocacy Group, Dec. 3-5

(Letter was sent to:  Barbara Comstock (VA-10), William Hurd (TX-23), Lamar Smith(TX-21), John Duncan (TN-2), Ryan Costello(PA-6), Scott Perry (PA-4), Duncan Hunter (CA-50), Andy Barr (KY-6), Daniel Donovan (NY-11), Brian Fitzpatrick (PA-8), Chris Collins (NY-27), Evan Jenkins (WV-3), Lou Barletta (PA-11), Steve Stivers, (OH-15), David Joyce (OH-14), and cc’d to…

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DIPG Advocacy Group Letter to House Leadership

re:  H. Res. 69 House Vote before the end of Session II, 115th Congress                                       November 28, 2018 To: The Honorable Speaker of the House of Representatives Paul Ryan (WI-1), The Honorable Majority Leader Kevin McCarthy, Minority Leader Nancy Pelosi (CA-12); The Honorable Chairman of the Energy…

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Celebrating a Win for Childhood Cancer Advocacy!

St. Baldrick’s Foundation, perhaps our greatest leader in advocacy today, brings us this amazing news about the STAR Act.  Because of the support of so many individual advocates across the country, and so many supporting organizations for pediatric cancer, STAR is “getting the money” from the Senate Appropriations Committee!  This…

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DIPG Awareness Day—A National Movement

I’m re-posting this as, for some reason, the blog page isn’t allowing access to posts other than the one page…sorry, I’m not a tech genius and I don’t have a volunteer working on organizing our site. Original date was July 24, 2017. (H.Res.69 asks for a date henceforth, not just…

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May 17 is DIPG Awareness Day—A National Movement

I discovered it was the 2nd most common pediatric brain tumor, and responsible for the majority of pediatric brain cancer deaths each year.  If brain cancer is the leading cause of death in kids with cancer, it’s hardly irrelevant, no matter how you define ‘rare’. May 14, 2017, Santa Clarita,…

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DIPG Across the Map

Jenny Mosier, Executive Director of the Michael Mosier Defeat DIPG Foundation joins us to discuss a 50-State Project for DIPG, calling for volunteers in as many states as possible to work for a gubernatorial or state legislature proclamation for May 17 2017 DIPG Awareness Day.  The 2017 National DIPG Awareness…

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“Run the Rocks!” Event Supports Research Project for Pediatric Brain Cancer

March 6, 2017, Santa Clarita, CA–Jack’s Angels Foundation of Agua Dulce, CA is organizing the trail running event “Run the Rocks!”—including a family walk—at Vasquez Rocks County Park 10700 Escondido Canyon Rd, Agua Dulce 91350, on Sunday April 30th 2017, with races beginning at 9am.  The event opens at 8:00 am…

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Rubio, Bennet Reintroduce Legislation Benefiting Pediatric Cancer Research

Link to Marco Rubio’s site:  http://www.rubio.senate.gov/public/index.cfm/2017/2/rubio-bennet-reintroduce-legislation-benefitting-pediatric-cancer-research Feb. 27, 2017 Washington, D.C. – U.S. Senators Marco Rubio (R-FL), Michael Bennet (D-CO), Chris Van Hollen (D-MD), and Cory Gardner (R-CO) today reintroduced the RACE for Children Act (Research to Accelerate Cures and Equity for Children Act), legislation supporting the development of innovative and promising…

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