In Support of H. Res. 114

DIPG is a death sentence for children today, but it doesnā€™t have to be; this resolution is an important first step in securing the resources needed to develop better treatment options and find a cure. Congresswoman Jackie Speier (D-CA-14), leading sponsor of the DIPG Awareness Resolution Posted by the PNOCā€¦

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NEW Information Regarding the Funding Opportunity Announcement (FOA) PAR-16-348

February 1, 2018,Ā  The NIH Gabriella Miller Kids First Pediatric Research Program Team Dear Colleagues- The Kids First Program would like to inform you that the Funding Opportunity Announcement (FOA)Ā PAR-16-348, ā€œSmall Research Grants for Analyses of Data for the Gabriella Miller Kids First Data Resource (R03)ā€ recently expired, and theā€¦

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Sunshine Coast Daily: The Last Hope for Dying Children

by Jane Hansen, January 21, 2018, an Australian Outlet https://www.sunshinecoastdaily.com.au/news/last-hope-dying-children/3315273/ IT’S the last chance hospital for dying children – a Mexican treatment centre that Ā­refuses to publish results or co-operate with the medical community. But, when your daughter has a fatal strain of brain cancer, you will do anything –ā€¦

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Advocacy, Research, and TNCI with Beth Anne Baber

“Eight years ago, a 15 month-old little boy with platinum blond ringlets and bright blue eyes was diagnosed with high-risk neuroblastoma, a childhood cancer that results in around 255 deaths/year in the United States. Based on the size, location and maturity of his tumor, the toddler had less than 50%ā€¦

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Vesselon: Addressing the Challenges of Brain Cancer with Non-Invasive Technology

Rhodemann Li and Clayton Larsen, co-founders of Vesselon describe the unique blending of two technologies into one platform effectively solving the problemĀ of the blood-brain barrier in treating brain cancer. Ā Using ultrasound and micro-bubbles, the future of pediatric brain cancer treatment could include a simple hand-held device enhancing the delivery ofā€¦

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Letter from Gabriella Miller Kids First Program

Dear friends and followers, We would like to share information with you from the Gabriella Miller “Kids First” Pediatric Research Program, inspired of course by the late great, very young yet highly mighty Gabriella Miller, DIPG warrior, and childhood cancer activist. Ā There is also the opportunity here to subscribe toā€¦

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Genentech: Leading the Industry with iPODD, iMATRIX and More with Raphael Rousseau, MD, PhD

CCTR interviews Raphael Rousseau MD, PhD,the global franchise head of the innovative pediatric drug development group at Genentech. Considered the founder of the biotech industry, Genentech, a member of the Roche Group, has headquarters in South San Francisco, California. Genentech has been delivering on the promise of biotechnology for overā€¦

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Biden should take a note from the ā€˜original moonshotā€™ ā€” focus on just one cancer

If we find effective ways to treat these children, we will have solved one of the most challenging and lethal cancers. Those findings could apply to other difficult cancers and could have a large impact on the field.ā€ Taken from “STAT News”Ā https://www.statnews.com/2016/06/30/cure-one-cancer-dipg-way-cure/ By ANIL ADYANTHAYA @AnilAdyanthaya JUNE 30, 2016 Theā€¦

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CCTR Presents: Tracy Ryan and CannaKids helping save kids lives

CCTR interviews Tracy Ryan, CEO of CannaKids, an organization dedicated to providing the highest quality guidance, care, and cannabis medicine for seriously ill patients, particularly pediatric cancer patients. Ā CannaKids was inspired by Tracy’s daughter Sophie, who was diagnosed with brain cancer at 8 1/2 months old, and is a livingā€¦

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CCTR Presents Lisa Spedale and Leo Somerville

Lisa Spedale reveals the heart-wrenching motive for her involvement in one of the most genius technological advancements in the history of neuroscience. Ā Leo Somerville of technology company Renishaw Inc was changed forever by the heart of one little girl, Kira, afflicted with terminal DIPG. Ā Her brave fight aided the developmentā€¦

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