CCTR 6-16, “Ride for DIPG”

Childhood Cancer Talk Radio interviews Jesse Shumaker, founder of The Cure Starts Now Nebraska Chapter upon the loss of his 8 year old daughter Madelyn, who was afflicted with diffuse intrinsic pontine glioma (DIPG).   The Cure Starts Now is non-profit charitable organization dedicated to funding DIPG research, raising well …

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Team Ellie!

Fifteen-year old Ellie Waters talks with us from the UK about life as a teen with cancer and the challenges of alveolar rhabdomyosarcoma. Ellie has a twin sister Olivia, brother Bailey, and 3 more step-brothers from her parents new marriages.   Mum Samantha joins us also to speak to the …

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CCTR Interviews Morgan Platt, 12 yrs. old, 5-year survivor of GBM

Morgan Platt, 12 years old, 5 year survivor of GBM from Avon CT tells CCTR about her finishing a fundraiser for her two favorite charities, to the tune of $14,000.  Truly and inspiration, Morgan undergoes continuing chemotherapy and is beset by many sleepless nights and nausea…but her bright and shining …

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CCTR Presents Kathy Riley and We Can Pediatric Brain Tumor Network

Kathy Riley talks to CCTR about We Can Pediatric Brain Tumor Network, which began 20 years ago with the support and camaraderie between mothers of pediatric brain tumor patients.  The support and healing which came from their sharing was so helpful that they wanted to share it with others.  The …

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ABC2: Funding Creativity in Brain Cancer Research

Max Wallace, President and CEO of ABC2–Accelerate Brain Cancer Cure, talks about founder and venture capitalist Dan Case who had been afflicted with, and ultimately died of brain cancer. ABC2 has for a model Dan’s genius for taking risks fearlessly and applying the venture approach to brain cancer research and …

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CCTR talks to co-Founder Jonathan Agin and Dr. Charles Keller of cc-TDI (Science)

Today’s show features creative solutions to difficulties in treating childhood cancer with the Children’s Cancer Therapy Development Institute, cc-TDI, devoted to making all forms of childhood cancer survivable.  Co-founder, advocate for kids with cancer, and writer Jonathan Agin, and Scientific Director Dr. Charles Keller talk with CCTR.  Learn about a …

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CCTR Presents Congressman Knight’s HRes586 and the Runners Roundtable

CCTR is on the ROAD with the RUN for HRes586! Special guest Congressman Steve Knight explains the importance of this legislation that he authored, National DIPG Awareness Week and more consideration for those in urgent need of solutions, and our kids. A reunion of runners from around the country–Brian Jones, …

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CCTR Presents, “Realities of DIPG”

Jaime King, mother to Katie(7), aka Katherine the Brave, and Mark Landis, father to Parker (5), describe the realities faced by parents of DIPG-diagnosed children today. DIPG, diffuse intrinsic pontine glioma, is an invariably terminal pediatric brain tumor with no change in treatment protocol for over 40 years. Parents discover …

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CCTR interviews Dr. Kathy Warren(NCI) and Michael Antonellis(NBTS)

CCTR presents Dr. Kathy Warren, top researcher in pediatric neuro-oncology at the Center for Cancer Research at the National Cancer Institute (NCI), who discusses the history of DIPG research and the nature of this strange and misunderstood tumor, challenges to treatment, and hopeful new lines of research for effective therapies …

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CCTR Presents Advocate Paul Miller of Littleton, CO

Paul speaks in depth about his commitment to children with cancer, to speak for them and to carry the message that they are being systematically ignored by our medical research system. Paul volunteers for St. Baldrick’s Foundation, which gives most of it’s income to research and is the largest contributor …

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