Congressman Knight Champions Awareness Legislation for Children with Cancer

January 30, 2018, Santa Clarita, CA–One year ago today, Congressman Steve Knight (R-CA-25) introduced with Congresswoman Jackie Speier (D-CA-14) H.Res.69, the National DIPG Awareness Resolution to the House Energy and Commerce Committee.  The Resolution persists today, amid an intensive political landscape in 2018, for children with the deadliest pediatric brain …

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Congressman Knight Champions Awareness Legislation for Forgotten Children

January 23, 2018, Santa Clarita, CA–Amid an intensive political landscape in 2018 persists an National Awareness Resolution, H.Res.69, for children with the deadliest pediatric brain cancer, DIPG:  diffuse intrinsic pontine glioma.  Not only does the bill call for an Awareness Day for these children and their families, May 17, it …

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Portrait of a Mom: Quality of Life and Neuroblastoma, with Sarah Brewer

click to download podcast

Sarah Brewer knows the fear; through years of experience with her son Ben, diagnosed with Neuroblastoma at 2 years of age, her daughter Madeline just born, hers is a story of the most pervasive power of all:  love. Her family changed forever, but love and caring remain intact and reign supreme.

Hearing Sarah’s story of commitment and faith in the face of perilous uncertainty, for so long, is a testament to the preciousness of her son Ben in his brave fight, and to the importance of embracing the best in each moment–and insisting on it.
Sarahs blog documenting Ben’s awesome survival is at www.strongerthanilook.com, a must-read for parents of children with cancer.

The podcast can be found online at:  http://bit.ly/CCTR12-14-17.  (our podcast links are always case-sensitive)

You can listen to live TogiNet radio at www.TogiNet.com.  Childhood Cancer Talk Radio airs every Thursday at 4pm Eastern time, 1pm Pacific.

Kids First 2.0 with Ellyn Miller

Ellyn Miller joins us to discuss the Gabriella Miller Kids First Research Act, originally signed into law by President Obama in 2014. The original bill ensured that a special fund was created at National Institutes of Health for research into pediatric disease, which historically receives inadequate funding for research. We’re …

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A Pioneering Journey, with Emma Wrenn

Emma Wrenn joins us to share her experience with her daughter Keira, who just passed away this last August as a result of her battle with DIPG, diffuse intrinsic pontine glioma. Keira’s case was public, and many of us around the world followed her story. Emma shares candidly what life …

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Outside the Box: Solutions for Kids with Target Pediatric AML

Julie Guillot and Dr. Soheil Meshinchi, an attending physician at Seattle Children’s Hospital treating children with high-risk leukemias, join us to discuss the innovative and exciting Target Pediatric AML program which promises genomic sequencing for targeted, effective treatment. Dr. Meshinchi oversees the world’s largest pediatric AML tissue repository, located at …

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Tamlin Hall’s Journey with BPDCN; Queensland, AUS

Kerrilee Hall and her 13 year old daughter Tamlin visit with us today from Queensland, Australia. Tamlin is at the 100 day mark post bone-marrow transplant or BMT for BPDCN treatment, or Blastic Plasmacytoid Dendritic Cell Neoplasm, a disease difficult to diagnose as it exhibits traits of leukemia and lymphoma, …

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“My Dog Named Hope” Comforts Children and Supports Research

The new children’s book “My Dog Named Hope” is about a special girl, her amazing dog, and a family’s journey through childhood cancer. The story was based on a compilation of the experiences of many childhood cancer families by the author, Joe Dean during his time working for the US …

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Go4TheGoal and the Historic Golden Steps for Pediatric Cancer

Beth Stefanacci and Carina Trenka join us to share their experience and agenda with Go4theGoal, founded in 2006 shortly after 13-year-old Richard Stefanacci was diagnosed with Ewing’s Sarcoma. During his treatment, his family quickly became aware of the lack of assistance available to families battling pediatric cancers. Go4theGoal’s unwavering mission …

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