DIPG Awareness Run kicks-off the WEEK in California

The DIPG Awareness Run on May 25, 2015 marked the beginning of the first celebrated DIPG Awareness Week in the State of California.  Declared in June of 2014 by the California State Assembly, thanks to the work of Assemblyman Scott Wilk, a national statement and achievement was made for DIPG, …

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DIPG Awareness Week in California, May 25-31

Wednesday, May 20, Santa Clarita, CA–DIPG, diffuse intrinsic pontine glioma, is a pediatric brain tumor that is invariably terminal with no progress made to that effect in over 35 years of clinical record.  DIPG is responsible for roughly 80% of pediatric brain tumor deaths annually[1], the leading cause of cancer-related …

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Because of Lauren…

  Lauren Hill, 19, died on Friday, April 10 2014 after a very public, 16-month battle with DIPG.  In her fight, she began the victory against indifference to childhood cancer, and for awareness for DIPG–diffuse intrinsic pontine glioma–an invariably terminal pediatric brain tumor, in the midst of which thousands of …

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Update: 1st DIPG Awareness Run of 2015, Sunday 2/22 at noon

Jan. 26, 2015 Santa Clarita, CA On Sunday, February 22, 2015, (2/22/2015) at 12pm, the first DIPG Awareness Run will begin across the Santa Clarita Valley.  The Run starts at the entrance to Six Flags Magic Mountain, at the Old Road and Magic Mountain Parkway and the entrance to Interstate 5, …

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Definition of Terms-a Journey in Awareness

A Journey in Awareness Everything changed after October 28, 2011 when my son Jack was diagnosed with diffuse intrinsic pontine glioma, or “DIPG”, a pediatric brainstem tumor with no survivors.  Though I lost my precious 3 year old boy to this practically unknown monster, I knew at the time that …

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