Chase Jones and the Biden Cancer Initiative

Chase Jones is a survivor of childhood brain cancer, founder of Vs. Cancer Foundation, and is organizing community leadership around the country for the September 21 Biden Cancer Summit. He discusses his own experience with brain cancer at 18 and its personal ramifications, including survivor guilt and how he overcameā€¦

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Tamlin Hall (AUS) Beating BPDCN, and her Blog at BraveryBox

Tamlin Hall and her mum Kerrilee visit with us to share Tamlin’s story of surviving BPDCN, and the new network of hope and support that has grown from their experience with this rare but deadly disease. Tamlin’s writing, at 14, shows subtlety and power beyond her years, but more importantlyā€¦

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Kortney Rose Foundation Pioneers Fundraising for Pediatric Brain Cancer

Kristen Gillette, Executive Director of the Kortney Rose Foundation in Oceanport, NJ, joins us to discuss the abrupt loss of her daughter Kortney in 2006 to a deadly brain tumor and the change of the landscape of childhood cancer research since then. Joining us in Segment II is Eric Montgomery,ā€¦

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Princess Keira’s Dream: One Girl’s Battle, A Worldwide War

Emma Wrenn joins us from the UK to discuss her new book about the life of her brave daughter Keira, who was one of a handful of children who pioneered the CED modality of treatment for DIPG in the care of Dr. Steven Gill at University of Bristol. Diffuse intrinsicā€¦

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Oncoceutics: Real-Time Solutions for Cancer Treatment

Joshua Allen, Senior Vice President of Research and Development at Oncoceutics joins us to explain a novel group of compounds called imipridones that he helped to create which target specific mutations in an wide array of cancer types. ONC201, the first that he personally discovered, is now being used inā€¦

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Appeal for a Presidential Proclamation for the Deadliest Pediatric Brain Cancer

On Day 23 of Brain Tumor Awareness Month in 2018, it seemed apropos to share this appeal: The Honorable Donald J. Trump President of the United States The White House Office of Proclamations 1600 Pennsylvania Avenue NW Washington, DC 20500   Dear President Trump,   On behalf of the DIPGā€¦

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May 17 is DIPG Awareness Day in California; H.Res.69 Awaits a U.S. House Vote

Most people simply don’t know that our children are not a priority, unless pediatric cancer directly impacts them or someone very close to them. May 14, Santa Clarita, CA–what began in 2014 in California as the first State Awareness Resolution for DIPG, diffuse intrinsic pontine glioma, the deadliest and theā€¦

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A Legacy of Love and Hope: Julianna Sayler Foundation

Stacie Sayler of Walla Walla Washington tells the story of a happy family of 5 on a small farm, Eric Sayler the father is a pastor, and mom home-schools her children.Ā  One day everything changed when Stacie noticed her daughter’s eye was not tracking properly. Julianna was diagnosed shortly thereafterā€¦

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May 17 Marks an Acton-Agua Dulce Tradition for Powderpuff and Brain Cancer

  May 2, 2018, Agua Dulce CA–Vasquez High School students in Acton are preparing for their 6th Annual Powderpuff Football Game benefiting Jackā€™s Angels, a local charity dedicated to awareness and research for DIPG, the deadliest pediatric brain cancer, and advocacy for children with cancer. The Powderpuff Game began inā€¦

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“Lighten Our Darkness”: Two Moms Advocate for Others from Life’s Most Tragic Loss

Kirsten Finley and Jamie Franzini, both coincidentally from the same Congressional District in Florida–that of Rep. DeSantis (R-FL-6)–discuss their recent and tragic losses and resulting action in advocacy for children with cancer to inspire greater awareness for the perilous situation so many families find themselves in every day in theā€¦

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