Urgency of Need: Awareness and Research for Pediatric Brain Cancer, with Steven Healey

Steven Healey shares the inspiration behind the foundation, his beautiful, forever-5 year old daughter Brooke who’s life lasted just eight months post diagnosis of DIPG, a deadly pediatric brain cancer. Healey describes the harrowing experience as a parent, but also about a new-found community of families dedicated to funding research…

Continue reading

US. House of Representatives: Regarding Vague Reference Objections to Awareness Days

‘We don’t do those anymore…’ Now what? This is a brief description of an occasional yet pervasive challenge which DIPG Advocacy Group has met in its visits to Congressional Offices in Washington DC regarding the legitimacy of House Resolutions designating an awareness day, as the newly introduced H. Res. 114,…

Continue reading

Reps Speier, Joyce Introduce Bipartisan Resolution to Fight Deadly Pediatric Cancer

Contact: DC – Tracy Manzer (202) 225-3531 (W) / (202) 538-0641 (C) tracy.manzer@mail.house.gov CA – Katrina Rill (650) 342-0300 (W) / (650) 208-7441 (C) katrina.rill@mail.house.gov Reps Speier, Joyce Introduce Bipartisan Resolution to Fight Deadly Pediatric Cancer Washington, DC –Today, Reps. Jackie Speier (D-San Francisco/San Mateo) and David P. Joyce (R-Cleveland),…

Continue reading

CC-TDI Research Series I: DIPG Tumor Cell Hotel

Dr. Charles Keller, Scientific Director of the Children’s Cancer Therapy Development Institute, joins us with Dr. Anju Karki, post-doctoral fellow and DIPG Tumor Cell Hotel project leader describe this creative design to affect a real solution for children diagnosed with arguably the deadliest pediatric brain cancer, diffuse intrinsic pontine glioma.…

Continue reading