Dr. Michelle Monje-Deissiroth of Stanford University and Dr. Adam Green of University of Colorado, Denver, join us to discuss the breadth of their research as pediatric neuro-oncologists, specifically regarding DIPG, diffuse intrinsic pontine glioma. They discuss how they were inspired to study this particular disease as a focal point for much of their research, and the general state of the research landscape with regard to the challenges facing treatment and the hope of new discoveries which give important clues to causes and biological understanding.
Dr. Monje and Dr. Green were conferring experts of Congressman Steve Knight’s (CA-25) H.Res.69, the DIPG Awareness Resolution, which designates an Awareness Day for DIPG, and confronts the inadequacies of a medical research culture which systematically neglects those most urgently needing solutions.
Cecilio Torres, whos daughter tragically died of brain cancer and began the Gabriella’s Smile Foundation(San Antonio, TX) in her honor, gives us the unique perspective as a parent. He is joined by Paul Miller (Littleton, CO), concerned citizen turned tireless advocate for children with cancer, who shares his perspective as an onlooker to a rapidly growing community of children with a so-called rare disease and their families in the last 5 years.