click pic for podcast download
Paul Melmeyer, Director of Federal Policy for NORD, the National Organization for Rare Disorders,joins us to discuss NORD’s advocacy activities at the local, State, and federal level. The pioneering organization in support of all patients with rare diseases first introduced the Orphan Disease Act in 1983, the year of its founding, and made those with rare disease a force in the world, and a voice in the medical community. Rare Disease Day is February 28; to learn more about NORD, visit www.rarediseases.org, and www.rarediseaseday.us.
