National Recognition for Pediatric Brain Cancer: HRes69 TEXT
Awareness (flyer) for the urgent need for solutions and research for the deadliest PEDIATRIC cancers
NO PARENT SHOULD LEARN THAT THERE ARE NO SOLUTIONS FOR THEIR CHILD BECAUSE FOR ALL PRACTICAL PURPOSES THE HIS/HER LIFE HAS NO VALUE IN THE MEDICAL RESEARCH SYSTEM.
IT’S TIME THIS CHANGED FOR PEDIATRIC, AND FOR TERMINAL DISEASE.
Thirty-one states in 2018, and 21 states in 2017 had proclamations for DIPG Awareness Day because of a nationwide movement for DIPG and childhood cancer awareness, indicating a national desire for the Resolution; above is Pennsylvania’s contribution.
PRIORITIZE PEDIATRIC AND HIGH-RISK DISEASE FOR RESEARCH FUNDING
The Constitution is for We the People.
Less than 4% of our tax-dollars designated for cancer research benefits pediatric research specifically. As such, the NCI is the greatest contributor to pediatric research; smaller research budget percentages come from the private sector. The result? There has been no change in standard treatment protocol nor terminal prognosis for DIPG children in over 50 years. Parents routinely discover that there are no solutions for their child and they must watch them die in utter helplessness because “the numbers aren’t great enough for investors.” H.Res.69 is the first Awareness Resolution that points this out, specifically, about the lack of research funding for pediatric cancer. It was written for children and families, parents who have been demanding at least a conversation about increasing this percentage number. We recognize that this is merely symptomatic of a deeper problem with our system–and that a simple acknowledgement of the relative neglect of research for children with cancer, and a commitment to finding solutions together, is our goal for starting the conversation.