In this edition of Childhood Cancer Talk Radio, members of the DIPG Advocacy Group Gerry Tye (Syndey, AUS), Katherine Bader (Rhineland, Missouri) and Marcelo Ortigao (Fort Collins, CO) share their personal experiences with DIPG, one of the more common types of childhood brain cancer, and the deadliest with very few…
Keith Desserich, co-founder of The Cure Starts Now worldwide charity for pediatric brain tumor research, joins us today at this hopeful new year’s beginning. When Keith and his wife Brooke found out that their beautiful daughter Elena had DIPG, a devastating pediatric brain tumor, there were no dedicated clinical trials,…
For the love of Aspen, diagnosed 6/20/2020 at the age of 4 with DIPG, a terrifying childhood brain cancer, father Ryan, mother Allison, and Aunt Tristin join us to share what this journey has been like as we are precariously close to the discovery of a cure. Along with grandfather…
podcast download Arms Wide Open Childhood Cancer Foundation’s mission (AWOCCF) is to fund less toxic therapies for children with cancer so they can have a better quality of life as they battle the disease and to give families hope by bridging the funding gap and making available potentially life-saving clinical…
–The Arms Wide Open Cancer Foundation newsletter Dec. 31, 2020 Celebrating good news for the childhood cancer community! A string of successes at the federal level to wrap up 2020! Happy New Year! Though 2020 was a very challenging year, the childhood cancer community celebrated many hard-fought victories in November…
What’s in a day? Everything. For us, absolutely everything. Madam Speaker, After 5 years of advocating for the National DIPG Awareness Resolution I’ve discovered that for the third introduction in 2019, the lead sponsor never intended to fight for this bill, or these kids, to be considered with respect to…
