jackangel 10 December, 2019 Uncategorized As originally published by the National Cancer Institute December 3, 2019, by NCI Staff The expanding use of genomic tests has raised questions about the risks and benefits of sharing personal genomic data.Credit: National Cancer Institute Last spring, at the end of his sophomore yearā¦
jackangel 12 December, 2019 Uncategorized click pic for podcast āAfter symptoms that appeared suddenly and two visits to the pediatrician, Luke Morin was taken to the Emergency Department at Childrenās Hospital Colorado. On April 8, 2018, Lukeās family received devastating news that there was an inoperable and very aggressive tumorā¦
“While we wait,” declared Jace Ward from Wamego Kansas, to an NIH Symposium on genomic data sharing in September, 2019, “DIPG won’t wait! It won’t wait to take my mobility, my sight, my speech and my life…” With an extraordinary opportunity to shine a light on one of the darkestā¦
Ricardo Garcia, CEO, Cesare Spadoni, COO, and Jonathan Agin, Head of Patient Advocacy for Oncoheroes Biosciences join us to discuss this relatively new company, founded in 2017, and it’s unique and thoughtful approach to childhood cancer research. The families of each of the three gentlemen have each been affected directlyā¦
Today’s show features Nancy Goodman and Kids v. Cancer, the notable leader in childhood cancer advocacy and legislation in the United States. Nancy wrote the Creating Hope Act of 2012, which has created over $1B in funding for pediatric cancer research in the private sector with the Pediatric Priority Reviewā¦
BethAnn Telford, an endurance athlete and brain cancer survivor, advocate for brain cancer patientsāespecially children, made a special delivery for the DIPG Advocacy Group this past week on Capitol Hill. A letter to the leadership of the Energy and Commerce Committee in the House of Representatives, the Speaker of theā¦
