“Action Days” coming for Kids on Cancer’s Death Row: HRes586 “Chad and Jack’s DIPG Resolution”

After Jack died I learned that DIPG is responsible for most of the brain tumor deaths in children, so, how many have to die until their lives are worth saving? April 2, 2016 Santa Clarita, CA—The significant rise in awareness for the devastating lack of funding for research into causes…

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CCTR Presents Advocate Paul Miller of Littleton, CO

Paul speaks in depth about his commitment to children with cancer, to speak for them and to carry the message that they are being systematically ignored by our medical research system. Paul volunteers for St. Baldrick’s Foundation, which gives most of it’s income to research and is the largest contributor…

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New Funding Opportunity in the Kids First Program

Message from NIH to subscriber transmitted by Janet Demeter (JAF) 3-28-2016 Dear Colleague, The Common Fund’s Gabriella Miller Kids First Pediatric Research (https://commonfund.nih.gov/KidsFirst) program (Kids First) is developing a data resource for the pediatric research community of well-curated clinical and genetic sequence data that will allow scientists to identify genetic…

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CCTalkRadio Presents Gerry Tye of Australia

Part I: Advocate for children with cancer Gerry Tye shares his experience with his son Talin, diagnosed with DIPG in 2012, and for parents the importance of trusting one’s instincts regarding one’s own child when confronted with medical protocol for terminal illness. Gerry supports children diagnosed with cancer and their…

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CCTalkRadio Presents: George Dahlman of the Children’s Cause for Cancer Advocacy

George Dahlman, CEO of the Children’s Cause for Cancer Advocacy, talks about the importance of advocacy in affecting change in legislation and the way our Administration, Congress, and Government Agencies communicate to better accommodate the needs of our children with cancer.  Host Janet Demeter enjoys a rant about the “Great…

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