May 17 Marks an Acton-Agua Dulce Tradition for Powderpuff and Brain Cancer

  May 2, 2018, Agua Dulce CA–Vasquez High School students in Acton are preparing for their 6th Annual Powderpuff Football Game benefiting Jackā€™s Angels, a local charity dedicated to awareness and research for DIPG, the deadliest pediatric brain cancer, and advocacy for children with cancer. The Powderpuff Game began inā€¦

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“Lighten Our Darkness”: Two Moms Advocate for Others from Life’s Most Tragic Loss

Kirsten Finley and Jamie Franzini, both coincidentally from the same Congressional District in Florida–that of Rep. DeSantis (R-FL-6)–discuss their recent and tragic losses and resulting action in advocacy for children with cancer to inspire greater awareness for the perilous situation so many families find themselves in every day in theā€¦

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Four Pennies Supports Project Open DIPG

Open DIPG (Diffuse Intrinsic Pontine Glioma) Research Project This research project is all about collaboration, and is the first of its kind in many ways. ā€œOpen DIPG (diffuse intrinsic pontine glioma)ā€ is the first translational, multi-institutional study that will address an unmet need for treating pediatric Central Nervous System (CNS)ā€¦

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Hike 4 Pennies: Uniting the Childhood Cancer Community

Ginny McLean, Communications and Outreach Director for Swifty Foundation joins us to discuss the Hike 4 Pennies program with hiker Erick Montgomery who has taken on the challenge of the Pacific Crest Trail, from Tijuana, Mexico to the Canadian border to raise funds for urgently needed pediatric brain cancer research.ā€¦

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Death Sentence for 300 Children Each Year in the United States Motivates DIPG Advocacy Group Trip to Washington DC

April 14, 2018 The current medical research system…is non-apologetically and systematically divested of concern. April 12, 2018, Santa Clarita, CA–The DIPG Advocacy Group, organized by childhood cancer advocate Janet Demeter of Agua Dulce, CA is preparing a trip to Washington DC for the week of April 16, 2018 to visitā€¦

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STRAIGHT TALK with the Fachons about Neil’s Incredible DIPG Journey

Both parents Dean and Wendy Fachon join us to share the story of their son Neil Fachon’s diagnosis of DIPG, one of the deadliest pediatric brain cancers. Their journey included the hope of an experimental treatment at the Burzynski Clinic near Houston, TX, and what it was like to endureā€¦

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