DIPG Awareness Run kicks-off the WEEK in California

The DIPG Awareness Run on May 25, 2015 marked the beginning of the first celebrated DIPG Awareness Week in the State of California.  Declared in June of 2014 by the California State Assembly, thanks to the work of Assemblyman Scott Wilk, a national statement and achievement was made for DIPG, …

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DIPG Awareness Week in California, May 25-31

Wednesday, May 20, Santa Clarita, CA–DIPG, diffuse intrinsic pontine glioma, is a pediatric brain tumor that is invariably terminal with no progress made to that effect in over 35 years of clinical record.  DIPG is responsible for roughly 80% of pediatric brain tumor deaths annually[1], the leading cause of cancer-related …

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Update: 1st DIPG Awareness Run of 2015, Sunday 2/22 at noon

Jan. 26, 2015 Santa Clarita, CA On Sunday, February 22, 2015, (2/22/2015) at 12pm, the first DIPG Awareness Run will begin across the Santa Clarita Valley.  The Run starts at the entrance to Six Flags Magic Mountain, at the Old Road and Magic Mountain Parkway and the entrance to Interstate 5, …

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Definition of Terms-a Journey in Awareness

A Journey in Awareness Everything changed after October 28, 2011 when my son Jack was diagnosed with diffuse intrinsic pontine glioma, or “DIPG”, a pediatric brainstem tumor with no survivors.  Though I lost my precious 3 year old boy to this practically unknown monster, I knew at the time that …

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ACR 151

Breaking News Santa Clarita 6/5/2014 1:17pm–Today, through the efforts of California State Assemblyman Scott Wilk, a resolution has passed to declare a DIPG Awareness Week in the State of California.   Respectfully, the statistics exposed regarding DIPG incidence are perhaps the most conservative, and notably DIPG comprises roughly 10-12% incidence …

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