Tamlin Hall’s Journey with BPDCN; Queensland, AUS

Kerrilee Hall and her 13 year old daughter Tamlin visit with us today from Queensland, Australia. Tamlin is at the 100 day mark post bone-marrow transplant or BMT for BPDCN treatment, or Blastic Plasmacytoid Dendritic Cell Neoplasm, a disease difficult to diagnose as it exhibits traits of leukemia and lymphoma, …

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A Jog Around the Block for Brian Jones Becomes a National Sensation

The Run for the White House is a grassroots movement of runners and workout enthusiasts all rallying with their personal brand of activism to support awareness for childhood cancer, using the social media platform of Facebook to share their activities and motivations.  Brian Jones’s mission  with the Run for the …

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American Childhood Cancer Organization, CEO Ruth Hoffman

The gold ribbon and the childhood cancer awareness movement started with a few good moms (and dads) in the 1970s…  Ruth Hoffman, CEO of the American Childhood Cancer Organization, walks us through the journey to today and Amazon’s million gold ribbon boxes!  “Still, there’s a long way to go…” says …

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Go4TheGoal and the Historic Golden Steps for Pediatric Cancer

Beth Stefanacci and Carina Trenka join us to share their experience and agenda with Go4theGoal, founded in 2006 shortly after 13-year-old Richard Stefanacci was diagnosed with Ewing’s Sarcoma. During his treatment, his family quickly became aware of the lack of assistance available to families battling pediatric cancers. Go4theGoal’s unwavering mission …

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Nicole Vathy and “Baby” Shawn face DIPG with the Golden Niagara Falls of September

Nicole Vathy, single mom of seven, shares her journey with her youngest, Shawn, who has been diagnosed with diffuse intrinsic pontine glioma.  Shawn is one of the few who survive past the year mark to two years with a stable tumor.  Nicole candidly shares with us this very difficult road …

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DIPG Awareness Day—A National Movement

(H.Res.69 asks for a date henceforth, not just for this year, and retroactively–that May 17th be National DIPG Awareness Day.  The importance of the Resolution is with the raising of awareness to the negelect of pediatric cancer research in our medical research system, and the unacceptable realities that parents across …

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With Love and Hope from Mexico

From Monterrey Mexico, childhood cancer advocate Christina Wascher joins the show with Kristoffer Nordstrom, father to 5-year-old Linnea who is currently undergoing treatment there for DIPG, with hopeful success 6 weeks into treatment. The Nordstrom family is from Sweden and they are prepared to remain at least six months in …

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Advocacy, Research, and TNCI with Beth Anne Baber

“Eight years ago, a 15 month-old little boy with platinum blond ringlets and bright blue eyes was diagnosed with high-risk neuroblastoma, a childhood cancer that results in around 255 deaths/year in the United States. Based on the size, location and maturity of his tumor, the toddler had less than 50% …

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Roy’s Run for Christopher

Who knew so much was beginning in Santa Clarita, CA, a medium-sized community with a significant influence and leadership in caring for others.  Childhood Cancer is not a comfortable subject for anyone, yet the unspoken rule of family is ingrained in certain members of this community, and it dominates here. …

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May 17 is DIPG Awareness Day—A National Movement

I discovered it was the 2nd most common pediatric brain tumor, and responsible for the majority of pediatric brain cancer deaths each year.  If brain cancer is the leading cause of death in kids with cancer, it’s hardly irrelevant, no matter how you define ‘rare’. May 14, 2017, Santa Clarita, …

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