McCaul, Van Hollen, Speier Childhood Cancer Bill Passes U.S. House

From the website of Congressman Michael McCaul, https://mccaul.house.gov/media-center/press-releases/mccaul-van-hollen-speier-childhood-cancer-bill-passes-us-house Dec 6, 2016 Press Release WASHINGTON, D.C. – Today, co-chairs of the Childhood Cancer Caucus, Congressmen Michael McCaul (TX-10) and Chris Van Hollen (MD-08), and incoming co-chair Congresswoman Jackie Speier (CA-14), applaud the U.S. House passage of H.R. 3381, Childhood Cancer STAR Act. The …

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Congressman Knight Celebrated as “Hero for Children with Cancer”

Congressman Knight Attends Santa Clarita Event 2/13 Celebrating HRes586, Chad and Jack’s DIPG Resolution “More still needs to be done for our kids; while I was hopeful of Moonshot, I also noticed that it continues to marginalize childhood cancer, where it should be front and center of the Initiative,” said …

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Moonshot

Chad and Jack’s DIPG Resolution and Childhood Cancer; is it relevant? The Resolution is named for Chad Carr of Michigan and Jack Demeter of California, both beloved and perished to DIPG. …this is about making a decision, a decision to not look away, but to acknowledge the relevance of life. …

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2015 Advocacy Report

For partnering organizations, groups, individuals. Jack’s Angels Foundation:  Advocacy Report and General Update for Collaborative Individuals, Groups, and Organizations “What your money’s been doing.”   General Description:  This follows a journey in advocacy for children and their families with DIPG, that more can be done for them in the future, and …

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Childhood Cancer Awareness; why won’t they “go GOLD”?

In Loving Memory of Evylah d. 10.10.15 September was Childhood Cancer Awareness Month, but for some reason the President refused to flood-light the White House gold, even for a day, as it goes pink for breast cancer, rainbow for same-sex marriage, and the list goes on.  To add insult to injury, …

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Update: 1st DIPG Awareness Run of 2015, Sunday 2/22 at noon

Jan. 26, 2015 Santa Clarita, CA On Sunday, February 22, 2015, (2/22/2015) at 12pm, the first DIPG Awareness Run will begin across the Santa Clarita Valley.  The Run starts at the entrance to Six Flags Magic Mountain, at the Old Road and Magic Mountain Parkway and the entrance to Interstate 5, …

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Letter to the President

December 25, 2014 Dear President Obama and First Lady Michelle Obama, Please accept my deepest thanks for your replies to my letter last summer about D.I.P.G. (diffuse intrinsic pontine glioma), and the darkness of the experience that so many families have endured, and continue to face each day.  I consider …

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Definition of Terms-a Journey in Awareness

A Journey in Awareness Everything changed after October 28, 2011 when my son Jack was diagnosed with diffuse intrinsic pontine glioma, or “DIPG”, a pediatric brainstem tumor with no survivors.  Though I lost my precious 3 year old boy to this practically unknown monster, I knew at the time that …

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