May 17 is DIPG Awareness Day—A National Movement

I discovered it was the 2nd most common pediatric brain tumor, and responsible for the majority of pediatric brain cancer deaths each year.  If brain cancer is the leading cause of death in kids with cancer, it’s hardly irrelevant, no matter how you define ‘rare’. May 14, 2017, Santa Clarita, …

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Trailblazing to a Cure: DIPG-Treatment Advisory Council (G-TAC)

G-TAC founder and Executive Director of MaxCure Foundation Jonathan Agin, and G-TAC Medical Advisory Board Member Dr. Sabine Mueller, top neuro-oncology researcher and clinical expert at UCSF, discuss a new concierge-type service for families of the newly-diagnosed with DIPG (diffuse intrinsic pontine glioma) to more expediently direct them to more …

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Mom in the Midst

A warning to listeners:  this contains emotionally sensitive material.  CCTR interviews Judith Jaimes Contreras, mom to Ruben who is suffering through the progression of DIPG, a deadly pediatric brain tumor. She candidly shares the reality that hundreds of other families in the US are facing right now: the challenge of …

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“Run the Rocks!” Event Supports Research Project for Pediatric Brain Cancer

March 6, 2017, Santa Clarita, CA–Jack’s Angels Foundation of Agua Dulce, CA is organizing the trail running event “Run the Rocks!”—including a family walk—at Vasquez Rocks County Park 10700 Escondido Canyon Rd, Agua Dulce 91350, on Sunday April 30th 2017, with races beginning at 9am.  The event opens at 8:00 am …

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Vesselon: Addressing the Challenges of Brain Cancer with Non-Invasive Technology

Rhodemann Li and Clayton Larsen, co-founders of Vesselon describe the unique blending of two technologies into one platform effectively solving the problem of the blood-brain barrier in treating brain cancer.  Using ultrasound and micro-bubbles, the future of pediatric brain cancer treatment could include a simple hand-held device enhancing the delivery of …

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Keira Wrenn: DIPG Survivor

It’s with great joy and anticipation that this article was entitled.  CCTR interviews Emma Wrenn who’s daughter Keira is a survivor of DIPG, diffuse intrinsic pontine glioma, a virtually unheard-of experience. Emma shares with us the realities of diagnosis and experimental treatment, and the inevitable challenges of living with the …

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Zamora Moon: Living with DIPG

CCTR intereviews Marisa Martinez, mom to Zamora Moon, a little 9-year old girl battling DIPG, diffuse intrinsic pontine glioma, arguably one of the deadliest cancers which is almost exclusively pediatric.  Her pioneering journey into the unknown includes treatments in Germany and the UK.  Lisa Spedale, who’s daughter Kira was the …

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Baby Shawn leads September Walk for Pediatric Cancer

By Mia Summerson mia.summerson@niagara-gazette.com  Original article here Tune in to Childhood Cancer Talk Radio 9/1/2016 Live at 4pm EST from the Event!!! One year after his cancer diagnosis, Shawn Kennedy and his family are still fighting the good fight, but now they’re getting proactive and shifting their focus toward generating …

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A Grieving Father’s Invitation To Donald Trump And Hillary Clinton To Discuss Childhood Cancer As A National Priority

Jonathan Agin, Huffington Post 7/28/2016  http://www.huffingtonpost.com/jonathan-agin/a-grieving-fathers-invita_b_11197554.html Mr. Trump and Ms. Clinton: Congratulations, each one of you has presumptively garnered the nomination of your political party and will find yourself on the election ballot in November. Up to this point, hundreds of millions of dollars have been spent in the political …

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CCTR 6-16, “Ride for DIPG”

Childhood Cancer Talk Radio interviews Jesse Shumaker, founder of The Cure Starts Now Nebraska Chapter upon the loss of his 8 year old daughter Madelyn, who was afflicted with diffuse intrinsic pontine glioma (DIPG).   The Cure Starts Now is non-profit charitable organization dedicated to funding DIPG research, raising well …

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