What if?

Childhood Cancer Advocacy 101 What if it were your child?  God help you…you’d discover very quickly that the medical research system doesn’t consider your child’s life investment-worthy, that no therapies have been developed for this disease for decades, and that urgency of need and potential years of life lost are…

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CCTR Presents, “Realities of DIPG”

Jaime King, mother to Katie(7), aka Katherine the Brave, and Mark Landis, father to Parker (5), describe the realities faced by parents of DIPG-diagnosed children today. DIPG, diffuse intrinsic pontine glioma, is an invariably terminal pediatric brain tumor with no change in treatment protocol for over 40 years. Parents discover…

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Press Release 1/13/2016

“Chad and Jack’s DIPG Resolution” (unofficially titled for Chad Carr of Michigan, and Jack Demeter, of California) http://knightforms.house.gov/news/email/show.aspx?ID=QL2FAABJSRT6G “Letter to Colleagues” by Adam Brooks (introductory letter to Resolution)      /     Resolution Text KNIGHT INTRODUCES BIPARTISAN CHILDHOOD CANCER RESEARCH BILL  CONGRESSMAN WORKING WITH AGUA DULCE RESIDENT TO INCREASE…

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2015 Advocacy Report

For partnering organizations, groups, individuals. Jack’s Angels Foundation:  Advocacy Report and General Update for Collaborative Individuals, Groups, and Organizations “What your money’s been doing.”   General Description:  This follows a journey in advocacy for children and their families with DIPG, that more can be done for them in the future, and…

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Petition for DIPG and Childhood Cancer

Please help us get a National Day for our DIPG heroes!   This could seriously help our kids and childhood cancer research.  That’s right, you really do have the power to create change!  All it takes is clicking a button, but you have to actually do it for it to work,…

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DIPG Awareness Week in California, May 25-31

Wednesday, May 20, Santa Clarita, CA–DIPG, diffuse intrinsic pontine glioma, is a pediatric brain tumor that is invariably terminal with no progress made to that effect in over 35 years of clinical record.  DIPG is responsible for roughly 80% of pediatric brain tumor deaths annually[1], the leading cause of cancer-related…

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Because of Lauren…

  Lauren Hill, 19, died on Friday, April 10 2014 after a very public, 16-month battle with DIPG.  In her fight, she began the victory against indifference to childhood cancer, and for awareness for DIPG–diffuse intrinsic pontine glioma–an invariably terminal pediatric brain tumor, in the midst of which thousands of…

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Definition of Terms-a Journey in Awareness

A Journey in Awareness Everything changed after October 28, 2011 when my son Jack was diagnosed with diffuse intrinsic pontine glioma, or “DIPG”, a pediatric brainstem tumor with no survivors.  Though I lost my precious 3 year old boy to this practically unknown monster, I knew at the time that…

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Potential Therapy Found

From Northwestern University Feinberg School of Medicine Potential Therapy Found for Incurable Pediatric Brain Tumor Share on facebookShare on googleShare on twitterShare on emailMore Sharing Services44 by Nora Dunne on Nov 17, 2014 Diffuse intrinsic pontine glioma (DIPG) is inoperable because of the tumor’s vital location on the brainstem. Northwestern…

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Our Mission 2014

This post is a repeat of our home page, the content of which is very important yet is often overlooked.  Here the links are kept intact for easy reference.  Also, our literature is offered here as well.   PRWeb press release    LEAFLET brochure    DESCRIPTION of Purpose   Did You Know?…

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