Childhood Cancer Talk Radio interviews Jesse Shumaker, founder of The Cure Starts Now Nebraska Chapter upon the loss of his 8 year old daughter Madelyn, who was afflicted with diffuse intrinsic pontine glioma (DIPG). The Cure Starts Now is non-profit charitable organization dedicated to funding DIPG research, raising well…
#KatherinetheBrave #runforDIPG #HRes586 #LosAngeles For immediate release June 7, 2016 Los Angeles CA–Today the Angel Runner hits the pavement of downtown Los Angeles in memory of Katie King, aka Katherine the Brave, a little 7-yr old girl from Placentia who, sadly, succumbed to DIPG last evening 6/6/2016 around 7:30pm in…
For immediate release Relay for Jack: Local Communities come together in support of National DIPG Awareness Week May 24, 2016, Santa Clarita, CA—HRes586 was introduced to the House of Representatives Energy and Commerce Committee on January 13, 2016, by Congressman Steve Knight (R-CA-25) the day after the Moonshot Initiative was…
To President Barack Obama: Thursday May 5, 2016 I had the pleasure of meeting with Fae Jencks in the Office of Science and Technology this last Tuesday regarding an Awareness Resolution currently in the House of Representatives, HRes586, designating the 4th week of May to be National DIPG Awareness Week. …
Childhood Cancer Advocacy 101 What if it were your child? God help you…you’d discover very quickly that the medical research system doesn’t consider your child’s life investment-worthy, that no therapies have been developed for this disease for decades, and that urgency of need and potential years of life lost are…
Today’s show features creative solutions to difficulties in treating childhood cancer with the Children’s Cancer Therapy Development Institute, cc-TDI, devoted to making all forms of childhood cancer survivable. Co-founder, advocate for kids with cancer, and writer Jonathan Agin, and Scientific Director Dr. Charles Keller talk with CCTR. Learn about a…
For Immediate Release pdf. version April 19, 2016 Santa Clarita, CA—Ultra-distance runner and activist for children with cancer Everett Smith of Redlands, CA and Janet Demeter of Jack’s Angels in Agua Dulce, CA team up to promote “Action Days” for HRes586 in support of children currently afflicted with DIPG and…
Jaime King, mother to Katie(7), aka Katherine the Brave, and Mark Landis, father to Parker (5), describe the realities faced by parents of DIPG-diagnosed children today. DIPG, diffuse intrinsic pontine glioma, is an invariably terminal pediatric brain tumor with no change in treatment protocol for over 40 years. Parents discover…
CCTR presents Dr. Kathy Warren, top researcher in pediatric neuro-oncology at the Center for Cancer Research at the National Cancer Institute (NCI), who discusses the history of DIPG research and the nature of this strange and misunderstood tumor, challenges to treatment, and hopeful new lines of research for effective therapies…
Part I: Advocate for children with cancer Gerry Tye shares his experience with his son Talin, diagnosed with DIPG in 2012, and for parents the importance of trusting one’s instincts regarding one’s own child when confronted with medical protocol for terminal illness. Gerry supports children diagnosed with cancer and their…
