Keira Wrenn: DIPG Survivor

It’s with great joy and anticipation that this article was entitled.  CCTR interviews Emma Wrenn who’s daughter Keira is a survivor of DIPG, diffuse intrinsic pontine glioma, a virtually unheard-of experience. Emma shares with us the realities of diagnosis and experimental treatment, and the inevitable challenges of living with the …

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SOS American Children Dying Daily #CureDIPG

November 13, 2016 Re:  SOS; American Children Dying Daily #CureDIPG #JacksAngels DIPG Report                Letter to President Obama 9/6/2016   H.Res.586 To the Honorable President-Elect Trump and his Staff: I write to you with great hope in my heart that indeed the change you represent …

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DIPG now the #1 killer of kids with cancer.

This link will take you to the Scientific American article online about DIPG.  Though technically a rare disease, DIPG is arguably significant. By Esther Landhuis on October 28, 2016, Scientific American online Scientists Tackle Lethal Childhood Brain Cancer In precision medicine era legacy gifts of patient brain tissue reveal disease mechanisms …

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Zamora Moon: Living with DIPG

CCTR intereviews Marisa Martinez, mom to Zamora Moon, a little 9-year old girl battling DIPG, diffuse intrinsic pontine glioma, arguably one of the deadliest cancers which is almost exclusively pediatric.  Her pioneering journey into the unknown includes treatments in Germany and the UK.  Lisa Spedale, who’s daughter Kira was the …

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Letter to the President

There is a specialized killer on the loose taking the lives of 350 children a year in our country with certain regularity; I believe we’d be using whatever resources necessary to track him down if he were a person. September 6, 2016 Dear President Obama, I’ve written to you a …

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Letter to President Obama, 9/10/2016

There is a specialized killer loose taking the lives of 350 children a year in our country with certain regularity; I believe we’d be using whatever resources necessary to track him down if he were a person. Dear President Obama,                     …

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September 1–Go4theGoal at the Golden Niagara Falls

You heard it here, first!  President Barack Obama’s 2016 Childhood Cancer Awareness Proclamation. CCTR interviews Beth Stefanacci and Carina Trenka of Go4theGoal, a dynamic support organization for children with cancer based in Cherry Hill, NJ, and one of the beneficiaries of the historic “Golden Steps for Pediatric Cancer Awareness Walk.” …

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Baby Shawn leads September Walk for Pediatric Cancer

By Mia Summerson mia.summerson@niagara-gazette.com  Original article here Tune in to Childhood Cancer Talk Radio 9/1/2016 Live at 4pm EST from the Event!!! One year after his cancer diagnosis, Shawn Kennedy and his family are still fighting the good fight, but now they’re getting proactive and shifting their focus toward generating …

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Legislative Landscape for Childhood Cancer Drug Development: Jonathan Agin, JD

CCTR interviews Jonathan Agin JD, father of Alexis who perished to DIPG in 2011 and 4 other young children, and official counsel and co-founder of the Children’s Cancer Therapy Development Institute.  One of our country’s foremost advocates for children with cancer, Jonathan describes the complexity of our medical research system …

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Regional Cancer Moonshot Summit Report

Cancer Moonshot Summit Report—Regional, Jack’s Angels Foundation, Santa Clarita, CA SCVTV Around Town Report On June 29, 2016, we were a group of 17 convening at The Master’s College in Santa Clarita for one of the few Southern California Regional Moonshot Summits, from a diversity of backgrounds and experience with …

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