Definition of Terms-a Journey in Awareness

A Journey in Awareness Everything changed after October 28, 2011 when my son Jack was diagnosed with diffuse intrinsic pontine glioma, or “DIPG”, a pediatric brainstem tumor with no survivors.  Though I lost my precious 3 year old boy to this practically unknown monster, I knew at the time that …

Continue reading

Potential Therapy Found

From Northwestern University Feinberg School of Medicine Potential Therapy Found for Incurable Pediatric Brain Tumor Share on facebookShare on googleShare on twitterShare on emailMore Sharing Services44 by Nora Dunne on Nov 17, 2014 Diffuse intrinsic pontine glioma (DIPG) is inoperable because of the tumor’s vital location on the brainstem. Northwestern …

Continue reading

Our Mission 2014

This post is a repeat of our home page, the content of which is very important yet is often overlooked.  Here the links are kept intact for easy reference.  Also, our literature is offered here as well.   PRWeb press release    LEAFLET brochure    DESCRIPTION of Purpose   Did You Know? …

Continue reading

ACR 151

Breaking News Santa Clarita 6/5/2014 1:17pm–Today, through the efforts of California State Assemblyman Scott Wilk, a resolution has passed to declare a DIPG Awareness Week in the State of California.   Respectfully, the statistics exposed regarding DIPG incidence are perhaps the most conservative, and notably DIPG comprises roughly 10-12% incidence …

Continue reading

Jack’s Story

Jack’s Story Jack, James-William Gregory Demeter, was born a healthy baby boy, 7 lbs-7oz, 22”, a Saturday Night little man at 11:36pm, Aug. 30, 2008. Our Sophie-Marie was nicknamed “Boo” for the little girl in Monster’s Inc, and Jack-Jack was for the little guy from The Incredibles. Needless to say, …

Continue reading