Letter to Speaker Pelosi, Dec. 22, 2020

What’s in a day?  Everything.  For us, absolutely everything. Madam Speaker, After 5 years of advocating for the National DIPG Awareness Resolution I’ve discovered that for the third introduction in 2019, the lead sponsor never intended to fight for this bill, or these kids, to be considered with respect to…

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In Support of H. Res. 114

DIPG is a death sentence for children today, but it doesn’t have to be; this resolution is an important first step in securing the resources needed to develop better treatment options and find a cure. Congresswoman Jackie Speier (D-CA-14), leading sponsor of the DIPG Awareness Resolution Posted by the PNOC…

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US. House of Representatives: Regarding Vague Reference Objections to Awareness Days

‘We don’t do those anymore…’ Now what? Despite progress made, resistance to this awareness will continue to recur intermittently, like a rash, until “The Little Bill that Could” passes. This is a brief description of an occasional yet pervasive challenge which DIPG Advocacy Group has met in its visits to…

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