DIPG Awareness Day—A National Movement

(H.Res.69 asks for a date henceforth, not just for this year, and retroactively–that May 17th be National DIPG Awareness Day.  The importance of the Resolution is with the raising of awareness to the negelect of pediatric cancer research in our medical research system, and the unacceptable realities that parents across …

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May 17 is DIPG Awareness Day—A National Movement

I discovered it was the 2nd most common pediatric brain tumor, and responsible for the majority of pediatric brain cancer deaths each year.  If brain cancer is the leading cause of death in kids with cancer, it’s hardly irrelevant, no matter how you define ‘rare’. May 14, 2017, Santa Clarita, …

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SOS American Children Dying Daily #CureDIPG

November 13, 2016 Re:  SOS; American Children Dying Daily #CureDIPG #JacksAngels DIPG Report                Letter to President Obama 9/6/2016   H.Res.586 To the Honorable President-Elect Trump and his Staff: I write to you with great hope in my heart that indeed the change you represent …

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Press Release 1/13/2016

“Chad and Jack’s DIPG Resolution” (unofficially titled for Chad Carr of Michigan, and Jack Demeter, of California) http://knightforms.house.gov/news/email/show.aspx?ID=QL2FAABJSRT6G “Letter to Colleagues” by Adam Brooks (introductory letter to Resolution)      /     Resolution Text KNIGHT INTRODUCES BIPARTISAN CHILDHOOD CANCER RESEARCH BILL  CONGRESSMAN WORKING WITH AGUA DULCE RESIDENT TO INCREASE …

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