No Time To Lose: Pediatric Brain Cancer and the DIPG Fast-Track with Lisa and Jace Ward

“While we wait,” declared Jace Ward from Wamego Kansas, to an NIH Symposium on genomic data sharing in September, 2019, “DIPG won’t wait! It won’t wait to take my mobility, my sight, my speech and my life…” With an extraordinary opportunity to shine a light on one of the darkest…

Continue reading

To the Leadership of the House of Representatives

H. Res. 114, the DIPG Awareness Resolution Out of sight and out of mind, the suffering and the tragedy continues, exemplified in a most horrific way by the experience of DIPG, which, out of the blue, robs the child of the use of their body until finally respiration ceases, retaining…

Continue reading