If No One Knows, No One Cares: #Moonshot4Kids Delivers Urgent Message to President Biden at the White House

“…This is the reality for childhood cancer; we all assume–even the President!–that if we invest in something it will of course trickle down to our children. This is the wake up call of #Moonshot4Kids: medical research investment into cures for children is one area where our priorities as Americans are completely upside-down. You don’t know it until it directly affects you. We spend more dollars on potato chips annually than our government invests into childhood cancer…”

Continue reading

Senator Rubio Applauds the Passage of his Resolution to Designate May 17 as DIPG #PediatricBrainCancer Awareness Day

News article from EIN Presswire May 19, 2020, Santa Clarita, CA–This evening, Senator Rubio’s office sent news to Janet Demeter, Organizer for the DIPG Advocacy Group and founder of Jack’s Angels, a childhood brain cancer foundation in Agua Dulce, CA, that a Senate vote had taken place and had unanimously…

Continue reading

Game Changer: Moonshot4Kids Congressional Briefing Brings Hope, New Research Opportunities to Pediatric Brain Cancer

Progress forward has come only from a collaborative effort by those who…could not turn away from this urgent, unmet need.  How much larger the effort would be…if more people were aware, and more people and resources joined us in this fight. Dr. Michelle Monje, Associate Professor of Neurology, and by…

Continue reading

Reps Speier, Joyce Introduce Bipartisan Resolution to Fight Deadly Pediatric Cancer

Contact: DC – Tracy Manzer (202) 225-3531 (W) / (202) 538-0641 (C) [email protected] CA – Katrina Rill (650) 342-0300 (W) / (650) 208-7441 (C) [email protected] Reps Speier, Joyce Introduce Bipartisan Resolution to Fight Deadly Pediatric Cancer Washington, DC –Today, Reps. Jackie Speier (D-San Francisco/San Mateo) and David P. Joyce (R-Cleveland),…

Continue reading

Facebook Post to Ryan Gosling

January 4, 2019, Agua Dulce, CA–I sent this note to Ryan Gosling on Facebook, hoping that somehow it would reach him: Hi Ryan, hoping this is actually your page. I just wanted you to know about an important awareness movement for the childhood cancer community, specifically for brainstem glioma–DIPG, the…

Continue reading

What If Your Child Lives When Expected to Die?

No matter how much time one may have with a child diagnosed with terminal cancer, the stresses of life can be extreme. Natalie Avila was diagnosed with DIPG, a common yet deadly pediatric brain cancer just before her third birthday. She was given 3-6 months to live, yet she is…

Continue reading

Appeal for a Presidential Proclamation for the Deadliest Pediatric Brain Cancer

On Day 23 of Brain Tumor Awareness Month in 2018, it seemed apropos to share this appeal: The Honorable Donald J. Trump President of the United States The White House Office of Proclamations 1600 Pennsylvania Avenue NW Washington, DC 20500   Dear President Trump,   On behalf of the DIPG…

Continue reading

Death Sentence for 300 Children Each Year in the United States Motivates DIPG Advocacy Group Trip to Washington DC

April 14, 2018 The current medical research system…is non-apologetically and systematically divested of concern. April 12, 2018, Santa Clarita, CA–The DIPG Advocacy Group, organized by childhood cancer advocate Janet Demeter of Agua Dulce, CA is preparing a trip to Washington DC for the week of April 16, 2018 to visit…

Continue reading

DIPG Awareness Day—A National Movement

I’m re-posting this as, for some reason, the blog page isn’t allowing access to posts other than the one page…sorry, I’m not a tech genius and I don’t have a volunteer working on organizing our site. Original date was July 24, 2017. (H.Res.69 asks for a date henceforth, not just…

Continue reading

Taking it to the Hill: DIPG Advocacy Group promotes H.Res.69

December 5, 2017, Washington, D.C.–H.Res.69, the DIPG Awareness Resolution, is a simple House Resolution which raises awareness to the realities of diffuse intrinsic pontine glioma, perhaps the most deadly pediatric brain cancer.  It also raises awareness to general pediatric cancer and brain cancer statistics, the leading cause of death in…

Continue reading