The Difference of a Decade: A Conversation with Childhood Cancer Advocate Jonathan Agin

This edition of Childhood Cancer Talk Radio gives a personal look at the landscape of childhood cancer advocacy over recent years, between parents of children afflicted with brain cancer.  For this, I have the honor of sharing conversation and perspective with fellow advocate Jonathan Agin, whose participation in the childhood…

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Oncoheroes: Advancing New Therapies for Childhood Cancer

Ricardo Garcia, CEO, Cesare Spadoni, COO, and Jonathan Agin, Head of Patient Advocacy for Oncoheroes Biosciences join us to discuss this relatively new company, founded in 2017, and it’s unique and thoughtful approach to childhood cancer research. The families of each of the three gentlemen have each been affected directly…

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Taking it to the Hill: DIPG Advocacy Group promotes H.Res.69

December 5, 2017, Washington, D.C.–H.Res.69, the DIPG Awareness Resolution, is a simple House Resolution which raises awareness to the realities of diffuse intrinsic pontine glioma, perhaps the most deadly pediatric brain cancer.  It also raises awareness to general pediatric cancer and brain cancer statistics, the leading cause of death in…

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Trailblazing to a Cure: DIPG-Treatment Advisory Council (G-TAC)

G-TAC founder and Executive Director of MaxCure Foundation Jonathan Agin, and G-TAC Medical Advisory Board Member Dr. Sabine Mueller, top neuro-oncology researcher and clinical expert at UCSF, discuss a new concierge-type service for families of the newly-diagnosed with DIPG (diffuse intrinsic pontine glioma) to more expediently direct them to more…

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MaxCure and the Run for the White House

Brian Jones, creator of the Run for the Whitehouse for Childhood Cancer on Facebook joins us to describe the beginnings of the program, what it has become, and discusses the adventure of teaming up with MaxCure Foundation with Executive Director Jonathan Agin. Both gentleman are prominent US advocates for children…

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Legislative Landscape for Childhood Cancer Drug Development: Jonathan Agin, JD

CCTR interviews Jonathan Agin JD, father of Alexis who perished to DIPG in 2011 and 4 other young children, and official counsel and co-founder of the Children’s Cancer Therapy Development Institute.  One of our country’s foremost advocates for children with cancer, Jonathan describes the complexity of our medical research system…

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CCTR talks to co-Founder Jonathan Agin and Dr. Charles Keller of cc-TDI (Science)

Today’s show features creative solutions to difficulties in treating childhood cancer with the Children’s Cancer Therapy Development Institute, cc-TDI, devoted to making all forms of childhood cancer survivable.  Co-founder, advocate for kids with cancer, and writer Jonathan Agin, and Scientific Director Dr. Charles Keller talk with CCTR.  Learn about a…

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Feb. 4 CCTalkRadio: Children’s Cancer Therapy Development Institute

Thursday, Feb. 4 at 4pm EST, CCTR interviews Jonathan Agin, Development Liaison and General Counsel for the Children’s Cancer Therapy Development Institute, or CC-TDI, a non-profit biotech company dedicated to eradicating childhood cancer in all forms.  Jonathan is an attorney by trade and has become one of the United States…

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Definition of Terms-a Journey in Awareness

A Journey in Awareness Everything changed after October 28, 2011 when my son Jack was diagnosed with diffuse intrinsic pontine glioma, or “DIPG”, a pediatric brainstem tumor with no survivors.  Though I lost my precious 3 year old boy to this practically unknown monster, I knew at the time that…

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