Moonshot

Chad and Jack’s DIPG Resolution and Childhood Cancer; is it relevant? The Resolution is named for Chad Carr of Michigan and Jack Demeter of California, both beloved and perished to DIPG. …this is about making a decision, a decision to not look away, but to acknowledge the relevance of life. …

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2015 Advocacy Report

For partnering organizations, groups, individuals. Jack’s Angels Foundation:  Advocacy Report and General Update for Collaborative Individuals, Groups, and Organizations “What your money’s been doing.”   General Description:  This follows a journey in advocacy for children and their families with DIPG, that more can be done for them in the future, and …

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Letter to the President

pdf version   letter sent to Congressional leaders President Barack Obama The White House 1600 Pennsylvania Avenue NW Washington DC, 20500 Tuesday, September 15, 2015 Dear President Obama, I cannot thank you enough for your kind replies to my previous letters about DIPG children and the desire for more effective action …

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“‘Just Say It!’–DIPG–The Run for a National Day” heralds the fight to end obscurity for DIPG in the United States.

DIPG parents must watch and wait in terror as their child disappears from this world knowing that to our current system they don’t matter. How many more of them have to die before they are a priority? This is why I’m running for a National Day. On PRWeb For Immediate …

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“Just Say It!”—the Run for a National Day for DIPG, run #2 of 4 is this Sunday in Los Angeles.

Most of the cases on the news this year of terminally diagnosed children have been DIPG, but no one knows it… Wednesday, September 2, 2015 Santa Clarita, CA—Event #2, the LA Beach Run of the “Just Say It!”—DIPG, the Run for a National Day begins this Sunday Sept. 6 at …

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Letter to Governor Brown, updated

This has been re-submitted to California Governor Jerry Brown –“Thank you Governor Brown, for your consideration and time, which I know is limited to very urgent matters. I must emphasize that my reaching out to you in full knowledge of this is due to the fact that I am aware of …

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JUST SAY IT!

“They were told it was a ‘rare’ brain tumor, and that nothing had been done for decades, in research, because the ‘numbers’ weren’t great enough for investors.  After his death, they came to learn that DIPG is one of the more common pediatric brain tumors(12% incidence), and responsible for roughly …

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Because of Lauren…

  Lauren Hill, 19, died on Friday, April 10 2014 after a very public, 16-month battle with DIPG.  In her fight, she began the victory against indifference to childhood cancer, and for awareness for DIPG–diffuse intrinsic pontine glioma–an invariably terminal pediatric brain tumor, in the midst of which thousands of …

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