A U.S. Congress United: Resolution Spotlights Childhood Brain Cancer, Establishes May 17 as DIPG Awareness Day

May 17, 2023, Washington, DC–Just in time for the 118th Congress, yesterday was the fifth introduction to the U.S. House of Representatives of the DIPG Awareness Resolution, which draws attention to the unmet medical needs of children with brain cancer and establishes May 17 as DIPG Awareness Day.  With a…

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Superpowers Unite: The ChadTough Defeat DIPG Foundation

Childhood Cancer Talk Radio Presents Tammi Carr and Jenny Mosier Today’s show features interviews with Tammi Carr and Jenny Mosier, leaders of their respective foundations, Chadtough, in Ann Arbor Michigan and Michael Mosier Defeat DIPG Foundation in Bethesda Maryland, recently merged into the ChadTough Defeat DIPG Foundation. Each foundation leader…

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Expanded Access Program Press Release from Oncoceutics

Oncoceutics Receives Foundation Grants to Establish an Expanded Access Program for ONC201 Philadelphia, PA (November 2, 2020) – Oncoceutics, a clinical-stage drug discovery and development company, announced today that it has received grants from Michael Mosier Defeat DIPG Foundation, Dragon Master Foundation and The ChadTough Foundation to fund an Expanded…

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#Moonshot4Kids: To House Committee Leadership

To Chairman Pallone, Ranking Member Walden, Chairwoman Eshoo, and Ranking Member Dr. Burgess: DIPG Advocacy Group and the undersigned are asking for your attention to the leading cause of cancer-related death in children, pediatric brain cancer, and H. Res. 114, the DIPG Awareness Resolution.  We are asking for its process…

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Game Changer: Moonshot4Kids Congressional Briefing Brings Hope, New Research Opportunities to Pediatric Brain Cancer

Progress forward has come only from a collaborative effort by those who…could not turn away from this urgent, unmet need.  How much larger the effort would be…if more people were aware, and more people and resources joined us in this fight. Dr. Michelle Monje, Associate Professor of Neurology, and by…

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Appeal for a Presidential Proclamation for the Deadliest Pediatric Brain Cancer

On Day 23 of Brain Tumor Awareness Month in 2018, it seemed apropos to share this appeal: The Honorable Donald J. Trump President of the United States The White House Office of Proclamations 1600 Pennsylvania Avenue NW Washington, DC 20500   Dear President Trump,   On behalf of the DIPG…

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May 17 is DIPG Awareness Day in California; H.Res.69 Awaits a U.S. House Vote

Most people simply don’t know that our children are not a priority, unless pediatric cancer directly impacts them or someone very close to them. May 14, Santa Clarita, CA–what began in 2014 in California as the first State Awareness Resolution for DIPG, diffuse intrinsic pontine glioma, the deadliest and the…

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DIPG Awareness Day—A National Movement

I’m re-posting this as, for some reason, the blog page isn’t allowing access to posts other than the one page…sorry, I’m not a tech genius and I don’t have a volunteer working on organizing our site. Original date was July 24, 2017. (H.Res.69 asks for a date henceforth, not just…

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Congressman Knight Champions Awareness Legislation for Forgotten Children

January 23, 2018, Santa Clarita, CA–Amid an intensive political landscape in 2018 persists an National Awareness Resolution, H.Res.69, for children with the deadliest pediatric brain cancer, DIPG:  diffuse intrinsic pontine glioma.  Not only does the bill call for an Awareness Day for these children and their families, May 17, it…

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May 17 is DIPG Awareness Day—A National Movement

I discovered it was the 2nd most common pediatric brain tumor, and responsible for the majority of pediatric brain cancer deaths each year.  If brain cancer is the leading cause of death in kids with cancer, it’s hardly irrelevant, no matter how you define ‘rare’. May 14, 2017, Santa Clarita,…

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