Kids First 2.0 with Ellyn Miller

Ellyn Miller joins us to discuss the Gabriella Miller Kids First Research Act, originally signed into law by President Obama in 2014. The original bill ensured that a special fund was created at National Institutes of Health for research into pediatric disease, which historically receives inadequate funding for research. We’re …

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KNIGHT REINTRODUCES BIPARTISAN BILL FOR CHILDHOOD CANCER RESEARCH

For a copy of pre-introductory text, click here. CONGRESSMAN WORKING WITH AGUA DULCE RESIDENT TO INCREASE ATTENTION AND FUNDING FOR PEDIATRIC CANCER (WASHINGTON, DC) – Representative Steve Knight (CA-25) and Congresswoman Jackie Speier (CA-14) reintroduced a bipartisan resolution on Monday that would raise awareness and support research for a form …

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Definition of Terms-a Journey in Awareness

A Journey in Awareness Everything changed after October 28, 2011 when my son Jack was diagnosed with diffuse intrinsic pontine glioma, or “DIPG”, a pediatric brainstem tumor with no survivors.  Though I lost my precious 3 year old boy to this practically unknown monster, I knew at the time that …

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Potential Therapy Found

From Northwestern University Feinberg School of Medicine Potential Therapy Found for Incurable Pediatric Brain Tumor Share on facebookShare on googleShare on twitterShare on emailMore Sharing Services44 by Nora Dunne on Nov 17, 2014 Diffuse intrinsic pontine glioma (DIPG) is inoperable because of the tumor’s vital location on the brainstem. Northwestern …

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