DIPG Awareness Day—A National Movement

(H.Res.69 asks for a date henceforth, not just for this year, and retroactively–that May 17th be National DIPG Awareness Day.  The importance of the Resolution is with the raising of awareness to the negelect of pediatric cancer research in our medical research system, and the unacceptable realities that parents across …

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May 17 is DIPG Awareness Day—A National Movement

I discovered it was the 2nd most common pediatric brain tumor, and responsible for the majority of pediatric brain cancer deaths each year.  If brain cancer is the leading cause of death in kids with cancer, it’s hardly irrelevant, no matter how you define ‘rare’. May 14, 2017, Santa Clarita, …

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National Cancer Institute’s Office of Advocacy Relations: A Conversation with Patrick Mahoney

Childhood Cancer Talk Radio interviews Patrick Mahoney from the Office of Advocacy Relations (OAR) at NCI.  The March 16 discussion included a brief history of the National Cancer Institute, it’s role as a scientific research institution as well as resource of support and direction for millions afflicted with cancer.  “We …

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Virtual Running Event Benefits Pediatric Cancer Research and offers Global Support for the 2017 National DIPG Awareness Resolution

From anywhere in the world, all are welcome to participate in the “Virtual Relay for Jack” event, supporting a research project for DIPG, the leading cause of death in children with brain cancer.  The event also provides a rallying point for the groundbreaking National DIPG Awareness Resolution which addresses the …

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SOS American Children Dying Daily #CureDIPG

November 13, 2016 Re:  SOS; American Children Dying Daily #CureDIPG #JacksAngels DIPG Report                Letter to President Obama 9/6/2016   H.Res.586 To the Honorable President-Elect Trump and his Staff: I write to you with great hope in my heart that indeed the change you represent …

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Letter to the President

There is a specialized killer on the loose taking the lives of 350 children a year in our country with certain regularity; I believe we’d be using whatever resources necessary to track him down if he were a person. September 6, 2016 Dear President Obama, I’ve written to you a …

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Keene and Spurgeon on The Childhood Cancer Guides

CCTR interviews Nancy Keene, well-known writer and advocate for children with cancer, and co-author of the Childhood Cancer, A Parent’s Guide to Solid Tumor Cancers. Her work has appeared in publications such as Reader’s Digest, Journal of the American Medical Association, Exceptional Parent, and Coping Magazine. Co-Author Anne Spurgeon founded, …

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Legislative Landscape for Childhood Cancer Drug Development: Jonathan Agin, JD

CCTR interviews Jonathan Agin JD, father of Alexis who perished to DIPG in 2011 and 4 other young children, and official counsel and co-founder of the Children’s Cancer Therapy Development Institute.  One of our country’s foremost advocates for children with cancer, Jonathan describes the complexity of our medical research system …

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Live from cc-TDI Pediatric Cancer Nanocourse 2016

Live from the Children’s Cancer Therapy Development Institute, CCTR interviews 4 participants of the 2016 Pediatric Cancer Nanocourse, an introduction to the scientific research process and an opportunity to build a network of informed and empowered advocates who can drive the cure of rare cancers. cc-TDI has for its mission …

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Driven Change from the Road!

Today’s show features Ronnie Duvall, “Driven Change” on facebook, one who truly walks the talk of his values.  Ronnie gave up his job and home to drive all 50 states in his quest for greater knowledge in how to create an organization which will truly address the needs of children …

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