May 17 is DIPG Awareness Day—A National Movement

I discovered it was the 2nd most common pediatric brain tumor, and responsible for the majority of pediatric brain cancer deaths each year.  If brain cancer is the leading cause of death in kids with cancer, it’s hardly irrelevant, no matter how you define ‘rare’. May 14, 2017, Santa Clarita, …

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Mom in the Midst

A warning to listeners:  this contains emotionally sensitive material.  CCTR interviews Judith Jaimes Contreras, mom to Ruben who is suffering through the progression of DIPG, a deadly pediatric brain tumor. She candidly shares the reality that hundreds of other families in the US are facing right now: the challenge of …

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KNIGHT REINTRODUCES BIPARTISAN BILL FOR CHILDHOOD CANCER RESEARCH

For a copy of pre-introductory text, click here. CONGRESSMAN WORKING WITH AGUA DULCE RESIDENT TO INCREASE ATTENTION AND FUNDING FOR PEDIATRIC CANCER (WASHINGTON, DC) – Representative Steve Knight (CA-25) and Congresswoman Jackie Speier (CA-14) reintroduced a bipartisan resolution on Monday that would raise awareness and support research for a form …

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CCTR Interviews Morgan Platt, 12 yrs. old, 5-year survivor of GBM

Morgan Platt, 12 years old, 5 year survivor of GBM from Avon CT tells CCTR about her finishing a fundraiser for her two favorite charities, to the tune of $14,000.  Truly and inspiration, Morgan undergoes continuing chemotherapy and is beset by many sleepless nights and nausea…but her bright and shining …

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CCTR Presents Kathy Riley and We Can Pediatric Brain Tumor Network

Kathy Riley talks to CCTR about We Can Pediatric Brain Tumor Network, which began 20 years ago with the support and camaraderie between mothers of pediatric brain tumor patients.  The support and healing which came from their sharing was so helpful that they wanted to share it with others.  The …

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CCTR interviews Dr. Kathy Warren(NCI) and Michael Antonellis(NBTS)

CCTR presents Dr. Kathy Warren, top researcher in pediatric neuro-oncology at the Center for Cancer Research at the National Cancer Institute (NCI), who discusses the history of DIPG research and the nature of this strange and misunderstood tumor, challenges to treatment, and hopeful new lines of research for effective therapies …

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Congressman Knight Celebrated as “Hero for Children with Cancer”

Congressman Knight Attends Santa Clarita Event 2/13 Celebrating HRes586, Chad and Jack’s DIPG Resolution “More still needs to be done for our kids; while I was hopeful of Moonshot, I also noticed that it continues to marginalize childhood cancer, where it should be front and center of the Initiative,” said …

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2015 Advocacy Report

For partnering organizations, groups, individuals. Jack’s Angels Foundation:  Advocacy Report and General Update for Collaborative Individuals, Groups, and Organizations “What your money’s been doing.”   General Description:  This follows a journey in advocacy for children and their families with DIPG, that more can be done for them in the future, and …

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Letter to the President

pdf version   letter sent to Congressional leaders President Barack Obama The White House 1600 Pennsylvania Avenue NW Washington DC, 20500 Tuesday, September 15, 2015 Dear President Obama, I cannot thank you enough for your kind replies to my previous letters about DIPG children and the desire for more effective action …

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