Congressman Knight Champions Awareness Legislation for Children with Cancer

January 30, 2018, Santa Clarita, CA–One year ago today, Congressman Steve Knight (R-CA-25) introduced with Congresswoman Jackie Speier (D-CA-14) H.Res.69, the National DIPG Awareness Resolution to the House Energy and Commerce Committee.  The Resolution persists today, amid an intensive political landscape in 2018, for children with the deadliest pediatric brain …

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Congressman Knight Champions Awareness Legislation for Forgotten Children

January 23, 2018, Santa Clarita, CA–Amid an intensive political landscape in 2018 persists an National Awareness Resolution, H.Res.69, for children with the deadliest pediatric brain cancer, DIPG:  diffuse intrinsic pontine glioma.  Not only does the bill call for an Awareness Day for these children and their families, May 17, it …

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FACTOR 2018: MIB Agents Osteosarcoma Mission Full Speed Ahead

Ann Graham, CEO of MIB Agents–Make-It-Better-Agents–and osteosarcoma survivor, joins us to discuss the great strides in improving outcomes for osteosarcoma patients which her organization accomplishes as they move forward. The FACTOR Conference began last year in 2017 and was enormously successful in bringing top oncologists, clinicians, patient families and advocates …

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H.Res.69: Crucial Awareness Supports Greater Research from the Tragic Example of DIPG

Dr. Michelle Monje-Deissiroth of Stanford University and Dr. Adam Green of University of Colorado, Denver, join us to discuss the breadth of their research as pediatric neuro-oncologists, specifically regarding DIPG, diffuse intrinsic pontine glioma. They discuss how they were inspired to study this particular disease as a focal point for …

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Kids First 2.0 with Ellyn Miller

Ellyn Miller joins us to discuss the Gabriella Miller Kids First Research Act, originally signed into law by President Obama in 2014. The original bill ensured that a special fund was created at National Institutes of Health for research into pediatric disease, which historically receives inadequate funding for research. We’re …

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“My Dog Named Hope” Comforts Children and Supports Research

The new children’s book “My Dog Named Hope” is about a special girl, her amazing dog, and a family’s journey through childhood cancer. The story was based on a compilation of the experiences of many childhood cancer families by the author, Joe Dean during his time working for the US …

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Annette and the Carson Leslie Foundation Host the Golden Toast

Annette Leslie is a mom who has been through the harrowing experience of losing her son to medulloblastoma in 2010. His extraordinary life and character inspired the Carson Leslie Foundation’s inception that same year, in Dallas Texas, and launched her into a world of advocacy for children with cancer, pediatric …

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“Talking Advocacy” with Danielle Leach

Today’s guest, Danielle Leach, gives the childhood cancer community helpful information about advocacy, being a parent of a child with cancer, bereavement, experience with the non-profit health industry, and more practical advice for parents. There are many ways to advocate; you don’t have to go to Washington and talk to …

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Virtual Running Event Benefits Pediatric Cancer Research and offers Global Support for the 2017 National DIPG Awareness Resolution

From anywhere in the world, all are welcome to participate in the “Virtual Relay for Jack” event, supporting a research project for DIPG, the leading cause of death in children with brain cancer.  The event also provides a rallying point for the groundbreaking National DIPG Awareness Resolution which addresses the …

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CureSearch CEO Laura Thrall

CCTR interviews Laura Thrall, CEO of CureSearch since 2012, with five years of refining purpose, innovation, and efficiency in the medical research industry to benefit pediatric cancer research funding. The primary goal and measure of the success of any new policy should be evident in patient care, access, and improved …

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