Please help us get a National Day for our DIPG heroes! This could seriously help our kids and childhood cancer research. That’s right, you really do have the power to create change! All it takes is clicking a button, but you have to actually do it for it to work,…
POST-Run VIDEO:
The DIPG Awareness Run on May 25, 2015 marked the beginning of the first celebrated DIPG Awareness Week in the State of California. Declared in June of 2014 by the California State Assembly, thanks to the work of Assemblyman Scott Wilk, a national statement and achievement was made for DIPG,…
Jan. 26, 2015 Santa Clarita, CA On Sunday, February 22, 2015, (2/22/2015) at 12pm, the first DIPG Awareness Run will begin across the Santa Clarita Valley. The Run starts at the entrance to Six Flags Magic Mountain, at the Old Road and Magic Mountain Parkway and the entrance to Interstate 5,…
December 25, 2014 Dear President Obama and First Lady Michelle Obama, Please accept my deepest thanks for your replies to my letter last summer about D.I.P.G. (diffuse intrinsic pontine glioma), and the darkness of the experience that so many families have endured, and continue to face each day. I consider…
A Journey in Awareness Everything changed after October 28, 2011 when my son Jack was diagnosed with diffuse intrinsic pontine glioma, or “DIPG”, a pediatric brainstem tumor with no survivors. Though I lost my precious 3 year old boy to this practically unknown monster, I knew at the time that…
Jack’s Story Jack, James-William Gregory Demeter, was born a healthy baby boy, 7 lbs-7oz, 22”, a Saturday Night little man at 11:36pm, Aug. 30, 2008. Our Sophie-Marie was nicknamed “Boo” for the little girl in Monster’s Inc, and Jack-Jack was for the little guy from The Incredibles. Needless to say,…
