Moonshot

Chad and Jack’s DIPG Resolution and Childhood Cancer; is it relevant? The Resolution is named for Chad Carr of Michigan and Jack Demeter of California, both beloved and perished to DIPG. …this is about making a decision, a decision to not look away, but to acknowledge the relevance of life. …

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Update: 1st DIPG Awareness Run of 2015, Sunday 2/22 at noon

Jan. 26, 2015 Santa Clarita, CA On Sunday, February 22, 2015, (2/22/2015) at 12pm, the first DIPG Awareness Run will begin across the Santa Clarita Valley.  The Run starts at the entrance to Six Flags Magic Mountain, at the Old Road and Magic Mountain Parkway and the entrance to Interstate 5, …

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Letter to the President

December 25, 2014 Dear President Obama and First Lady Michelle Obama, Please accept my deepest thanks for your replies to my letter last summer about D.I.P.G. (diffuse intrinsic pontine glioma), and the darkness of the experience that so many families have endured, and continue to face each day.  I consider …

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Definition of Terms-a Journey in Awareness

A Journey in Awareness Everything changed after October 28, 2011 when my son Jack was diagnosed with diffuse intrinsic pontine glioma, or “DIPG”, a pediatric brainstem tumor with no survivors.  Though I lost my precious 3 year old boy to this practically unknown monster, I knew at the time that …

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ACR 151

Breaking News Santa Clarita 6/5/2014 1:17pm–Today, through the efforts of California State Assemblyman Scott Wilk, a resolution has passed to declare a DIPG Awareness Week in the State of California.   Respectfully, the statistics exposed regarding DIPG incidence are perhaps the most conservative, and notably DIPG comprises roughly 10-12% incidence …

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