What We Do when there are NO OPTIONS, with Melany Knott

What would you do if your doctors provided no solutions for your child, when nowhere in your country was hope for survival inferred by treatment? Melany Knott tells us about her daughter Kaisey who is currently 17 months out of a diagnosis of DIPG, diffuse intrinsic pontine glioma, for which …

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Mom in the Midst

A warning to listeners:  this contains emotionally sensitive material.  CCTR interviews Judith Jaimes Contreras, mom to Ruben who is suffering through the progression of DIPG, a deadly pediatric brain tumor. She candidly shares the reality that hundreds of other families in the US are facing right now: the challenge of …

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Press Release 1/13/2016

“Chad and Jack’s DIPG Resolution” (unofficially titled for Chad Carr of Michigan, and Jack Demeter, of California) http://knightforms.house.gov/news/email/show.aspx?ID=QL2FAABJSRT6G “Letter to Colleagues” by Adam Brooks (introductory letter to Resolution)      /     Resolution Text KNIGHT INTRODUCES BIPARTISAN CHILDHOOD CANCER RESEARCH BILL  CONGRESSMAN WORKING WITH AGUA DULCE RESIDENT TO INCREASE …

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ACR 151

Breaking News Santa Clarita 6/5/2014 1:17pm–Today, through the efforts of California State Assemblyman Scott Wilk, a resolution has passed to declare a DIPG Awareness Week in the State of California.   Respectfully, the statistics exposed regarding DIPG incidence are perhaps the most conservative, and notably DIPG comprises roughly 10-12% incidence …

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