A U.S. Congress United: Resolution Spotlights Childhood Brain Cancer, Establishes May 17 as DIPG Awareness Day

May 17, 2023, Washington, DCā€“Just in time for the 118th Congress, yesterday was the fifth introduction to the U.S. House of Representatives of the DIPG Awareness Resolution, which draws attention to the unmet medical needs of children with brain cancer and establishes May 17 as DIPG Awareness Day.Ā  With aā€¦

Continue reading

Paul Daugherty: Hero is an overused term, but not in the case of Lauren Hill

Ā Paul Daugherty original article: Cincinnati Enquirer View Comments ā€œHeroā€™ā€™ is an overripeĀ word in sports. Loose use has trampled its meaning, its precision, its special-ness. ā€œThe hero of the gameā€™ā€™ is an oxymoron. Lauren Hill was not a basketball-playing hero. She was a hero who happened to play basketball. The differenceā€¦

Continue reading

Now Is The Time: “Moonshot4Kids” Congressional and White House OSTP Briefing Asserts Urgency for Childhood Brain Cancer

May 17 panel assembles to alert the Federal Government of the suffering and deaths of children with brain cancer, a leading killer of children in the USA downloadable pdf version “Now is the time for a Moonshot for Children.” –Michelle LeBeau, CSO Cancer Prevention Research Institute of Texas WASHINGTON, DC,ā€¦

Continue reading

Keith Desserich and The Cure Starts Now

Keith Desserich, co-founder of The Cure Starts Now worldwide charity for pediatric brain tumor research, joins us today at this hopeful new year’s beginning. When Keith and his wife Brooke found out that their beautiful daughter Elena had DIPG, a devastating pediatric brain tumor, there were no dedicated clinical trials,ā€¦

Continue reading

Virtual Running Event Benefits Pediatric Cancer Research and offers Global Support for the 2017 National DIPG Awareness Resolution

From anywhere in the world, all are welcome to participate in the ā€œVirtual Relay for Jackā€ event, supporting a research project for DIPG, the leading cause of death in children with brain cancer.Ā  The event also provides a rallying point for the groundbreaking National DIPG Awareness Resolution which addresses theā€¦

Continue reading

CCTR 6-16, “Ride for DIPG”

Childhood Cancer Talk Radio interviews Jesse Shumaker, founder of The Cure Starts Now Nebraska Chapter upon the loss of his 8 year old daughter Madelyn, who was afflicted with diffuse intrinsic pontine glioma (DIPG). Ā  The Cure Starts Now is non-profit charitable organization dedicated to funding DIPG research, raising wellā€¦

Continue reading

DIPG Awareness Week in California, May 25-31

Wednesday, May 20, Santa Clarita, CA–DIPG, diffuse intrinsic pontine glioma, is a pediatric brain tumor that is invariably terminal with no progress made to that effect in over 35 years of clinical record. Ā DIPG is responsible for roughly 80% of pediatric brain tumor deaths annually[1], the leading cause of cancer-relatedā€¦

Continue reading

Definition of Terms-a Journey in Awareness

A Journey in Awareness Everything changed after October 28, 2011 when my son Jack was diagnosed with diffuse intrinsic pontine glioma, or ā€œDIPGā€, a pediatric brainstem tumor with no survivors.Ā  Though I lost my precious 3 year old boy to this practically unknown monster, I knew at the time thatā€¦

Continue reading