Batten Juvenile Disease CLN3, a Genetic Nightmare

Christina Bouraimi (mother) and Nick Maroulis (nurse) join us on CCTalkRadio from Athens, Greece to tell the story of a brave young man Theodore who lives day by day with progressed symptoms of Batten Disease, CLN3.  There are 10 identified types of Batten Disease, which is itself one of approximately 50 …

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Keira Wrenn: DIPG Survivor

It’s with great joy and anticipation that this article was entitled.  CCTR interviews Emma Wrenn who’s daughter Keira is a survivor of DIPG, diffuse intrinsic pontine glioma, a virtually unheard-of experience. Emma shares with us the realities of diagnosis and experimental treatment, and the inevitable challenges of living with the …

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