DIPG as Ambassador to Congress and the Public for Childhood Cancer

The Public needs powerful examples attain sufficient awareness to ensure accountability from Congress. If we want childhood cancer legislation like STAR and RACE to truly be supported, to have their respective allocations approved, to build upon and allow greater development and support for pediatric research, the Public must be aware–thisā€¦

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In Support of H. Res. 114

DIPG is a death sentence for children today, but it doesnā€™t have to be; this resolution is an important first step in securing the resources needed to develop better treatment options and find a cure. Congresswoman Jackie Speier (D-CA-14), leading sponsor of the DIPG Awareness Resolution Posted by the PNOCā€¦

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Meet “Tattoo Tom” Mitchell: Father, Activist, Founder of Still Brave Foundation

Following the death of his daughter Shayla in 2009 from Hodgkinā€™s Lymphoma Tom dedicated his entire life to providing non-medical support to children with cancer and their families. Heā€™s also committed to raising awareness of the need for more research funding and safer, less toxic treatments for children with cancer.ā€¦

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May 17 is DIPG Awareness Day in California; H.Res.69 Awaits a U.S. House Vote

Most people simply don’t know that our children are not a priority, unless pediatric cancer directly impacts them or someone very close to them. May 14, Santa Clarita, CA–what began in 2014 in California as the first State Awareness Resolution for DIPG, diffuse intrinsic pontine glioma, the deadliest and theā€¦

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Death Sentence for 300 Children Each Year in the United States Motivates DIPG Advocacy Group Trip to Washington DC

April 14, 2018 The current medical research system…is non-apologetically and systematically divested of concern. April 12, 2018, Santa Clarita, CA–The DIPG Advocacy Group, organized by childhood cancer advocate Janet Demeter of Agua Dulce, CA is preparing a trip to Washington DC for the week of April 16, 2018 to visitā€¦

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Taking it to the Hill: DIPG Advocacy Group promotes H.Res.69

December 5, 2017, Washington, D.C.–H.Res.69, the DIPG Awareness Resolution, is a simple House Resolution which raises awareness to the realities of diffuse intrinsic pontine glioma, perhaps the most deadly pediatric brain cancer.Ā  It also raises awareness to general pediatric cancer and brain cancer statistics, the leading cause of death inā€¦

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VP Biden’s Cancer Moonshot Summit 6/29

For Immediate Release Vice President Bidenā€™s Cancer Moonshot Regional Summitā€”LA at The Masterā€™s College 6/29 Monday, June 20, 2016 Santa Clarita, CAā€”On May 25 2016, Vice President Biden announced the first-ever Cancer Moonshot Summit to take place on Wednesday, June 29th, including conversations in communities across the United States. Theseā€¦

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3-3 CCTR Presents Mattie Miracle Cancer Foundation

Peter Brown and Victoria Sardi-Brown tell the story of how their foundation began in 2009 after the death of their precious boy Mattie, 7, who had been diagnosed with osteosarcoma. Mattie Miracle Foundation has a powerful advocacy mission emphasizing the need for psychosocial standards of care for children with cancerā€¦

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For Immediate Release 10.5.15

On October 17, ā€˜4Anotherā€™ finishes its Across-the-USA Run for Childhood Cancer Awareness with local Jackā€™s Angels runner at the Santa Monica Pier. Monday, October 5, 2015, Santa Clarita CAā€”John McKay and Everett Smith began their cross-country run on June 6, 2015 in Virginia Beach, VA, and their final three daysā€¦

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ā€œJust Say It!ā€ā€”the Run for a National Day for DIPG, run #2 of 4 is this Sunday in Los Angeles.

Most of the cases on the news this year of terminally diagnosed children have been DIPG, but no one knows it… Wednesday, September 2, 2015 Santa Clarita, CAā€”Event #2, the LA Beach Run of the ā€œJust Say It!ā€ā€”DIPG, the Run for a National Day begins this Sunday Sept. 6 atā€¦

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