The Jack-Jack Memorial Run on Sunday, August 30th at 10am, heralds September as Childhood Cancer Awareness Month, encouraging City, State, and National Government buildings to “Go Gold” for Childhood Cancer Awareness Month. Our petition for a National DIPG Awareness Day can be found at www.credomobilize.com/p/DIPG, which uses DIPG as an example of one of the most deadly childhood cancers, 12% of pediatric brain tumor incidence yet responsible for 80% of pediatric brain tumor deaths annually, yet like ALL childhood cancers, is marginalized as rare and thus undeserving of research funding. There are hundreds of families currently facing the inevitable death of their child because, “the numbers aren’t great enough for investors.” Here in the USA, through the National Cancer Institute we have a budget for research. Even though cancer is the leading cause of death in children after accidents and injuries, only 4% of that research budget goes to finding solutions for pediatric cancer. Brain cancer much less, though it is the #1 cancer-related cause of death in children.
This run is the first of 4 runs throughout the month of September, culminating in the Run for a National DIPG Awareness Day on CureFest Weekend in Washington DC. To know more about CureFest, visit www.curefestdc.org.