DIPG Awareness Week in California, May 25-31

Wednesday, May 20, Santa Clarita, CA–DIPG, diffuse intrinsic pontine glioma, is a pediatric brain tumor that is invariably terminal with no progress made to that effect in over 35 years of clinical record.  DIPG is responsible for roughly 80% of pediatric brain tumor deaths annually[1], the leading cause of cancer-related…

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Because of Lauren…

  Lauren Hill, 19, died on Friday, April 10 2014 after a very public, 16-month battle with DIPG.  In her fight, she began the victory against indifference to childhood cancer, and for awareness for DIPG–diffuse intrinsic pontine glioma–an invariably terminal pediatric brain tumor, in the midst of which thousands of…

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Definition of Terms-a Journey in Awareness

A Journey in Awareness Everything changed after October 28, 2011 when my son Jack was diagnosed with diffuse intrinsic pontine glioma, or “DIPG”, a pediatric brainstem tumor with no survivors.  Though I lost my precious 3 year old boy to this practically unknown monster, I knew at the time that…

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Potential Therapy Found

From Northwestern University Feinberg School of Medicine Potential Therapy Found for Incurable Pediatric Brain Tumor Share on facebookShare on googleShare on twitterShare on emailMore Sharing Services44 by Nora Dunne on Nov 17, 2014 Diffuse intrinsic pontine glioma (DIPG) is inoperable because of the tumor’s vital location on the brainstem. Northwestern…

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Our Mission 2014

This post is a repeat of our home page, the content of which is very important yet is often overlooked.  Here the links are kept intact for easy reference.  Also, our literature is offered here as well.   PRWeb press release    LEAFLET brochure    DESCRIPTION of Purpose   Did You Know?…

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Jack’s Story

Jack’s Story Jack, James-William Gregory Demeter, was born a healthy baby boy, 7 lbs-7oz, 22”, a Saturday Night little man at 11:36pm, Aug. 30, 2008. Our Sophie-Marie was nicknamed “Boo” for the little girl in Monster’s Inc, and Jack-Jack was for the little guy from The Incredibles. Needless to say,…

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