Twenty-three year old Tori Moreno is fortunate not to remember too much of her early diagnosis with DIPG, but she remembers enough. Treated at the controversial Burzynski Clinic in Houston, TX, Tori did well on the treatments as an infant, and she is now a long-term survivor of the…
With Randy Hinton Without adequate national awareness of the urgent, unmet needs of children with cancer, the failure of the medical research system to address childhood cancer will continue as progress remains a high-grade uphill battle. Randy Hinton is a childhood cancer advocate from South Carolina, and father to…
On January 4, 2021, 6 year-old Jacob Senediak of Pittsburgh, PA died due to complications from his fight with DIPG, a deadly childhood brain cancer which spares mercilessly few of its victims. His father, Mark Senediak, joins us on Childhood Cancer Talk Radio to begin a discussion about efforts his…
Jessica Elder, LMSW, LCSW-NY has been the Bereavement Program Manager at Children’s Brain Tumor Foundation for 11 years. Originally from Pittsburgh, PA she acquired a Master of Science degree in social work from Columbia University in 2004, and spent 5 years working as a pediatric oncology social worker in an…
Childhood Cancer Talk Radio Presents Jessica Ressel-Doeden and Celeste Sabagh Today we hear from two strong, resilient, beautiful women who have beat the odds for a childhood brain cancer that normally proves to be inescapable and merciless. Jessica Ressel-Doeden from St. Louis Missouri here in the USA, and Celeste Sabagh…
Childhood Cancer Talk Radio Presents Tammi Carr and Jenny Mosier Today’s show features interviews with Tammi Carr and Jenny Mosier, leaders of their respective foundations, Chadtough, in Ann Arbor Michigan and Michael Mosier Defeat DIPG Foundation in Bethesda Maryland, recently merged into the ChadTough Defeat DIPG Foundation. Each foundation leader…
Childhood Cancer Talk Radio presents a conversation with Mina Carroll, foundation leader and childhood cancer advocate. Mina Carroll with the Storm the Heavens Fund in Philadelphia, PA, literally coined the “We Must Do Better” -for children with cancer- phrase to confront the terrible reality in our society today that children…
FOR IMMEDIATE RELEASE: May 17, 2021 CONTACT: Mackenzie Smith Dingell Honors Ann Arbor’s Chad Carr, Commemorates DIPG Awareness Day Dingell’s bipartisan resolution would establish a national DIPG Awareness Day on May 17 WASHINGTON, DC – Today, Congresswoman Debbie Dingell (D-MI) commemorated Diffuse Intrinsic Pontine Glioma (DIPG) Awareness Day by…
Today on Childhood Cancer Talk Radio on TogiNet.com at 4pm EST, Founder and CEO of Bexion Pharmaceuticals Dr. Ray Takigiku and Medical Affairs Consultant and Leader of the phase II clinical trial for DIPG/DMG at Cincinnati Children’s Hospital, Dr. Richard Curry. Both scientists provide insight into the…
In this edition of Childhood Cancer Talk Radio, members of the DIPG Advocacy Group Gerry Tye (Syndey, AUS), Katherine Bader (Rhineland, Missouri) and Marcelo Ortigao (Fort Collins, CO) share their personal experiences with DIPG, one of the more common types of childhood brain cancer, and the deadliest with very few…
